Prognostic analysis for patients with Waldenström's Disease

Prognostic Analyses on a Validation Series of Patients With Waldenström's Disease: Validation of International Prognostic Indexes, Evaluation of Progression-free Survival as a Surrogate Endpoint for Overall Survival. A FILO Study.

French Innovative Leukemia Organisation · NCT05911802

This study looks at patients with Waldenström's Disease to see if certain blood tests can help predict how their condition will progress and how they will respond to treatment.

Quick facts

Study typeObservational
Enrollment500 (estimated)
Ages18 Years and up
SexAll
SponsorFrench Innovative Leukemia Organisation (other)
Locations15 sites (Amiens and 14 other locations)
Trial IDNCT05911802 on ClinicalTrials.gov

What this trial studies

This observational study focuses on patients diagnosed with Waldenström's macroglobulinemia (WM), a condition characterized by lymphoplasmocytic infiltration and high levels of monoclonal immunoglobulin M (IgM). It aims to improve prognostic assessments for asymptomatic patients by evaluating various clinical and molecular factors, including serum albumin and free light chain concentrations. The study will follow patients until at least 2024 to gather comprehensive data on their disease progression and treatment outcomes.

Who should consider this trial

Good fit: Ideal candidates for this study are patients diagnosed with Waldenström's Disease who meet specific diagnostic criteria and can commit to long-term follow-up.

Not a fit: Patients with other chronic lymphoid malignancies or those who do not consent to participate will not benefit from this study.

Why it matters

Potential benefit: If successful, this study could lead to better prognostic tools for managing Waldenström's Disease, potentially improving patient outcomes.

How similar studies have performed: While this study builds on existing prognostic indices, its specific focus on asymptomatic patients and molecular characteristics may provide novel insights into the management of Waldenström's Disease.

Eligibility criteria

Show full inclusion / exclusion criteria
Inclusion Criteria:

* Patient with WM, fulfilling the diagnostic criteria defined at the 2nd Workshop on WM.
* Patient in whom follow-up is available until at least 01/01/2020. Each participating center should not enroll more 10% of patients lost to follow-up.
* Patient for whom a minimum annual follow-up is planned until 2024.
* Having given their consent for this study

Exclusion Criteria:

* Patient with other chronic lymphoid malignancy. Special attention will be paid to exclude other lymphoplasmacytic proliferations, especially marginal zone lymphoma.
* Patient with histological transformation in a diffuse large B-cell lymphoma or any other lymphoma at the time of the initiation of the 1st treatment.
* No consent for this study.

Where this trial is running

Amiens and 14 other locations

How to participate

  1. Review the eligibility criteria above with your treating physician.
  2. Visit the official trial page on ClinicalTrials.gov for the most current contact information and recruitment status.
  3. Contact the listed study coordinator or principal investigator to request pre-screening. Pre-screening is free and never obligates you to enroll.

View on ClinicalTrials.gov →

Conditions: Waldenstrom's Disease, Prognostic Index

Last reviewed 2026-05-15 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.