Online platform for dementia caregivers and patients to share memories
The Living Memory Home: Reducing Grief and Improving Relationships Between Home-Based Patients With ADRD and Their Family Caregivers
NA · Weill Medical College of Cornell University · NCT06225986
This study tests if an online platform that helps people with dementia and their caregivers share memories can improve their relationship and reduce feelings of grief.
Quick facts
| Phase | NA |
|---|---|
| Study type | Interventional |
| Enrollment | 70 (estimated) |
| Ages | 18 Years and up |
| Sex | All |
| Sponsor | Weill Medical College of Cornell University (other) |
| Locations | 1 site (New York, New York) |
| Trial ID | NCT06225986 on ClinicalTrials.gov |
What this trial studies
This study evaluates the Living Memory Home for Dementia Care Pairs (LMH-4-DCP), an online platform designed for individuals with dementia and their family caregivers to engage in reminiscence activities. Participants will log in to the platform three times a week for two weeks to complete activities aimed at reducing feelings of pre-loss grief and enhancing relationship quality. The study compares the intervention group with a control group that uses the platform without reminiscence features to assess the effectiveness of the intervention.
Who should consider this trial
Good fit: Ideal candidates include primary family caregivers of individuals in the early to moderate stages of dementia who are English-speaking and have internet access.
Not a fit: Patients who are in severe cognitive impairment stages or living in long-term care facilities may not benefit from this study.
Why it matters
Potential benefit: If successful, this intervention could help alleviate caregiver grief and improve the quality of relationships between caregivers and individuals with dementia.
How similar studies have performed: While similar approaches have been explored, this specific online reminiscence platform is a novel intervention in the context of dementia care.
Eligibility criteria
Show full inclusion / exclusion criteria
Inclusion Criteria: Family Caregivers: * be a primary source of care for a family member in the early to moderate stages of dementia * 18 years of age or older * English-speaking * able to use the internet and has internet access * residing in the United States Exclusion Criteria: Caregiver exclusion criteria: * is not the primary family caregiver of the PwD * under the age of 18-years-old * exhibits cognitive impairment (by scoring 3 or more on the SPMSQ) * does not speak English as a primary language. PwD exclusion criteria: * severe cognitive impairment detected by the clinical or study staff using validated, brief screening tools (e.g., a score of 8 errors or more on the SPMSQ) * does not demonstrate capacity to consent (e.g., a score of 9 or fewer errors on the University of California-San Diego Brief Assessment of Capacity to consent * PwD is living in a long-term care facility * does not speak English as a primary language * is under the age of 18 years old.
Where this trial is running
New York, New York
- Weill Cornell Medicine — New York, New York, United States (RECRUITING)
Study contacts
- Principal investigator: Holly Prigerson, PhD — Weill Medical College of Cornell University
- Study coordinator: Sydney C Saviano, B.A.
- Email: sys4002@med.cornell.edu
- Phone: 646-962-5637
How to participate
- Review the eligibility criteria above with your treating physician.
- Visit the official trial page on ClinicalTrials.gov for the most current contact information and recruitment status.
- Contact the listed study coordinator or principal investigator to request pre-screening. Pre-screening is free and never obligates you to enroll.
Conditions: Dyadic Family Caregiver-person With Dementia Online Intervention