Navigating Care for Liver Cancer Patients

Is this trial a fit for you?

A plain-English reading of the study's rules. Only the study team can confirm whether you qualify.

What this trial studies

This study aims to understand the personal perceptions and experiences of patients with liver cancer to enhance their care. Investigators will gather insights on the needs of these patients and their families, particularly those that have not been addressed in current care practices. The goal is to develop a targeted navigation program that assists participants in managing their diagnosis and treatment journey effectively.

Why it matters

Who can join: the full rules

Inclusion Criteria:

* HCC Patients:

  * Enrolled or eligible for enrollment in Unified Prospective Registry and Biorepository of Patients with Chronic Liver Disease or Hepatobiliary Cancers Including Hepatocellular Carcinoma (HCC) and Cholangiocarcinoma.
  * Diagnosis of hepatocellular carcinoma, confirmed by clinical chart review and International Classification of Diseases, Tenth Revision (ICD-10) C22.0.
  * Adults, age 18 or older
  * Able to provide informed consent
* All other interviewees:

  * Advocates who will self-identify as having had HCC.
  * Others who self-identify as either a caregiver or support person of an HCC patient.

Physicians/Licensed Independent Practitioners, Social Workers, Nurse Navigators, and Research Coordinators will all self-identify as being involved in the care of HCC patients.

Exclusion Criteria:

* Unable to speak Spanish or English
* West Haven Grade 2 or higher hepatic encephalopathy19 or other cognitive impairment.
* Adults unable or unwilling to consent
* Individuals who are not yet adults (infants, children, teenagers)
* Prisoners
* Given that this study is minimal risk and there are no risks to a potential fetus, investigators will not exclude pregnant women; however, no data about pregnancy or their fetus is being collected

Where it's running

• University of Miami
  Miami, Florida, United States Recruiting

Study contacts

• Principal investigator: Patricia Jones, MD — University of Miami
• Study coordinator: Gloria Figueroa
• Email: gef44@med.miami.edu
• Phone: (305) 243-0779

Similar studies

Other studies for the same condition or treatment. Recruiting studies are listed first.

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• Assessing blood biomarkers and MRI for liver cancer patients undergoing radiation therapy

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• Liquid biopsy to differentiate types of primary liver cancer

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• Evaluating liver embolization techniques for tumor management

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  Recruiting IRCCS San Raffaele · Milan · NCT05714124

How to take part

1. Review the eligibility criteria above with your treating physician.
2. Check the official listing on ClinicalTrials.gov for the latest contact details and recruitment status.
3. Contact the study coordinator or principal investigator to ask for pre-screening. Pre-screening is free and never obligates you to enroll.