Clinical trial Recruiting at 1 site Observational Ages 21 and up

National Research Registry for Blood Cancer Experiences

Official title: The Leukemia and Lymphoma Society (LLS) National Research Registry

Run by Blood Cancer United · NCT04806295 · Data updated 2026-11-12

This study is collecting personal experiences and medical information from people with blood cancer to help improve treatments and understand their journeys through diagnosis and treatment.

Quick facts

Study typeObservational
Ages21 Years and up
SexAll
Enrollment1000 (estimated)
SponsorBlood Cancer United
Academic / other
Locations1 site (Rye Brook, New York)
StatusRecruiting
StartedJuly 24, 2017
Main results expectedJuly 23, 2027
Study endsJuly 23, 2027
Registry record updatedApril 7, 2022
Trial IDNCT04806295 on ClinicalTrials.gov

Is this trial a fit for you?

Likely a good fit

Ideal candidates for this registry are individuals diagnosed with blood cancer at any stage of their treatment.

Probably not a fit

Patients who are unable or unwilling to provide informed consent will not benefit from this registry.

A plain-English reading of the study's rules. Only the study team can confirm whether you qualify.

What this trial studies

The LLS National Research Registry collects real-world experiences and medical outcomes from individuals diagnosed with blood cancer, tracking their journey before, during, and after treatment. This observational registry gathers patient information and medical data over time to answer critical research questions related to blood cancers. Participants can choose to upload their medical records and provide consent for their data to be shared with research partners to advance treatment options.

Why it matters

Potential benefit: If successful, this registry could enhance understanding of blood cancer treatments and improve patient outcomes through better-informed research.

How similar studies have gone: Other studies utilizing patient registries for blood cancer have shown promise in advancing treatment understanding and outcomes.

Who can join: the full rules

Show full inclusion / exclusion criteria
Inclusion Criteria:

People with blood cancer, before, during, and after blood cancer treatments.

Exclusion Criteria:

People unable or unwilling to sign informed consent.

Where it's running

  • Lymphoma and Leukemia Society
    Rye Brook, New York, United States
    Recruiting

Study contacts

Similar studies

Other studies for the same condition or treatment. Recruiting studies are listed first.

How to take part

  1. Review the eligibility criteria above with your treating physician.
  2. Check the official listing on ClinicalTrials.gov for the latest contact details and recruitment status.
  3. Contact the study coordinator or principal investigator to ask for pre-screening. Pre-screening is free and never obligates you to enroll.
Last reviewed 2026-11-14 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.