National Research Registry for Blood Cancer Experiences
Official title: The Leukemia and Lymphoma Society (LLS) National Research Registry
Run by Blood Cancer United · NCT04806295 · Data updated 2026-11-12
This study is collecting personal experiences and medical information from people with blood cancer to help improve treatments and understand their journeys through diagnosis and treatment.
Quick facts
| Study type | Observational |
|---|---|
| Ages | 21 Years and up |
| Sex | All |
| Enrollment | 1000 (estimated) |
| Sponsor | Blood Cancer United Academic / other |
| Locations | 1 site (Rye Brook, New York) |
| Status | Recruiting |
| Started | July 24, 2017 |
| Main results expected | July 23, 2027 |
| Study ends | July 23, 2027 |
| Registry record updated | April 7, 2022 |
| Trial ID | NCT04806295 on ClinicalTrials.gov |
Is this trial a fit for you?
✓Likely a good fit
Ideal candidates for this registry are individuals diagnosed with blood cancer at any stage of their treatment.
✕Probably not a fit
Patients who are unable or unwilling to provide informed consent will not benefit from this registry.
A plain-English reading of the study's rules. Only the study team can confirm whether you qualify.
What this trial studies
The LLS National Research Registry collects real-world experiences and medical outcomes from individuals diagnosed with blood cancer, tracking their journey before, during, and after treatment. This observational registry gathers patient information and medical data over time to answer critical research questions related to blood cancers. Participants can choose to upload their medical records and provide consent for their data to be shared with research partners to advance treatment options.
Why it matters
Potential benefit: If successful, this registry could enhance understanding of blood cancer treatments and improve patient outcomes through better-informed research.
How similar studies have gone: Other studies utilizing patient registries for blood cancer have shown promise in advancing treatment understanding and outcomes.
Who can join: the full rules
Show full inclusion / exclusion criteria
Inclusion Criteria: People with blood cancer, before, during, and after blood cancer treatments. Exclusion Criteria: People unable or unwilling to sign informed consent.
Where it's running
-
Lymphoma and Leukemia Society
Rye Brook, New York, United States Recruiting
Study contacts
- Study coordinator: Larry Saltzman, MD
- Email: larry.saltzman@lls.org
- Phone: 844-696-7228
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How to take part
- Review the eligibility criteria above with your treating physician.
- Check the official listing on ClinicalTrials.gov for the latest contact details and recruitment status.
- Contact the study coordinator or principal investigator to ask for pre-screening. Pre-screening is free and never obligates you to enroll.