National Research Registry for Blood Cancer Experiences
The Leukemia and Lymphoma Society (LLS) National Research Registry
Blood Cancer United · NCT04806295
This study is collecting personal experiences and medical information from people with blood cancer to help improve treatments and understand their journeys through diagnosis and treatment.
Quick facts
| Study type | Observational |
|---|---|
| Enrollment | 1000 (estimated) |
| Ages | 21 Years and up |
| Sex | All |
| Sponsor | Blood Cancer United (other) |
| Locations | 1 site (Rye Brook, New York) |
| Trial ID | NCT04806295 on ClinicalTrials.gov |
What this trial studies
The LLS National Research Registry collects real-world experiences and medical outcomes from individuals diagnosed with blood cancer, tracking their journey before, during, and after treatment. This observational registry gathers patient information and medical data over time to answer critical research questions related to blood cancers. Participants can choose to upload their medical records and provide consent for their data to be shared with research partners to advance treatment options.
Who should consider this trial
Good fit: Ideal candidates for this registry are individuals diagnosed with blood cancer at any stage of their treatment.
Not a fit: Patients who are unable or unwilling to provide informed consent will not benefit from this registry.
Why it matters
Potential benefit: If successful, this registry could enhance understanding of blood cancer treatments and improve patient outcomes through better-informed research.
How similar studies have performed: Other studies utilizing patient registries for blood cancer have shown promise in advancing treatment understanding and outcomes.
Eligibility criteria
Show full inclusion / exclusion criteria
Inclusion Criteria: People with blood cancer, before, during, and after blood cancer treatments. Exclusion Criteria: People unable or unwilling to sign informed consent.
Where this trial is running
Rye Brook, New York
- Lymphoma and Leukemia Society — Rye Brook, New York, United States (RECRUITING)
Study contacts
- Study coordinator: Larry Saltzman, MD
- Email: larry.saltzman@lls.org
- Phone: 844-696-7228
How to participate
- Review the eligibility criteria above with your treating physician.
- Visit the official trial page on ClinicalTrials.gov for the most current contact information and recruitment status.
- Contact the listed study coordinator or principal investigator to request pre-screening. Pre-screening is free and never obligates you to enroll.
Conditions: Blood Cancer