National registry for cerebral palsy in Switzerland

Is this trial a fit for you?

A plain-English reading of the study's rules. Only the study team can confirm whether you qualify.

What this trial studies

The Swiss Cerebral Palsy Registry collects comprehensive data on diagnosis, symptoms, treatment, and follow-up of individuals with cerebral palsy (CP) across Switzerland. Initiated in 2017, it aims to establish a representative cohort of children, adolescents, and adults with CP to enhance understanding of the condition's prevalence, risk factors, and clinical profiles. The registry facilitates research and knowledge exchange among clinicians, researchers, and therapists, ultimately striving to improve treatment and quality of life for those affected by CP.

Why it matters

Who can join: the full rules

Inclusion Criteria:

* Who were diagnosed with CP, confirmation of the diagnosis at the age of 5 years is required
* Who are born, treated for CP or living in Switzerland, and
* Who gave informed consent

Exclusion Criteria:

* Pure muscular hypotonia
* Neurometabolic diseases (e.g. neuronal storage diseases, leukodystrophies)
* Other progressive neurological diseases (e.g. spinocerebellar ataxias, hereditary spastic paraplegia, Rett syndrome, epileptic encephalopathy)

Where it's running

• Aarau Cantonal Hospital
  Aarau, Switzerland Recruiting
• University Children's Hospital Basel, UKBB
  Basel, Switzerland Recruiting
• Pediatric Institute of Southern Switzerland, Ospedale San Giovanni
  Bellinzona, Switzerland Recruiting
• Institute of Social and Preventive Medicine (ISPM), University of Bern
  Bern, Switzerland Recruiting
• University Children's Hospital Bern, Inselspital
  Bern, Switzerland Recruiting
• Zentrum für Entwicklungsförderung und pädiatrische Neurorehabilitation
  Biel, Switzerland Recruiting

Study contacts

• Principal investigator: Claudia E Kuehni, Prof. MD — Institute of Social and Preventive Medicine (ISPM), University of Bern
• Study coordinator: Claudia E Kuehni, Prof. MD
• Email: swiss-cp-reg.ispm@unibe.ch
• Phone: +41 31 684 35 07

Similar studies

Other studies for the same condition or treatment. Recruiting studies are listed first.

• Sensory Integration Therapy vs Conventional Physical Therapy in Children With Mixed Cerebral Palsy

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• Turkish version of ABILHAND-Kids Young CP: translation, adaptation, and reliability

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• Multisite upper limb surgery in children with unilateral cerebral palsy

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• Spinal Stimulation During Walking to See If Spasticity Lessens in Cerebral Palsy

  This study tests whether walking with non-invasive spinal stimulation reduces leg muscle tightness and improves walking in children and young adults with cerebral palsy.

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• Combined leg nerve blocks for kids with cerebral palsy after surgery

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• Smartphone gait checks for kids with unilateral spastic CP

  This study tests whether a phone’s accelerometer can reliably measure walking in children with unilateral spastic cerebral palsy.

  Recruiting Deraya University · Minya, Menia Governorate · NCT07730086

How to take part

1. Review the eligibility criteria above with your treating physician.
2. Check the official listing on ClinicalTrials.gov for the latest contact details and recruitment status.
3. Contact the study coordinator or principal investigator to ask for pre-screening. Pre-screening is free and never obligates you to enroll.