National registry documenting multiple sclerosis in Switzerland
Swiss Multiple Sclerosis Registry
This study is collecting information from people with multiple sclerosis in Switzerland to better understand their experiences and improve their quality of life.
Quick facts
| Study type | Observational |
|---|---|
| Enrollment | 10000 (estimated) |
| Ages | 18 Years and up |
| Sex | All |
| Sponsor | Swiss Multiple Sclerosis Registry Academic / other |
| Locations | 1 site (Zurich, Canton of Zurich) |
| Trial ID | NCT02980640 on ClinicalTrials.gov |
What this trial studies
The Swiss Multiple Sclerosis Registry is a national, patient-centered initiative aimed at documenting the epidemiology and quality of life of individuals living with multiple sclerosis (MS) in Switzerland. Utilizing a 'Citizen Science' approach, individuals with MS actively contribute as experts and participants in the research network. The registry conducts semi-annual surveys to gather data on various aspects of living with MS, including treatment access, mobility, mental health, and support systems. Participants can choose their level of involvement, from one-time surveys to ongoing data collection and medical record reviews.
Who should consider this trial
Good fit: Ideal candidates for this registry are individuals aged 18 and older with a confirmed diagnosis of multiple sclerosis who live in Switzerland or receive MS care there.
Not a fit: Patients who are younger than 18 years or do not reside in Switzerland or receive MS care in Switzerland may not benefit from this registry.
Why it matters
Potential benefit: If successful, this registry could enhance understanding of multiple sclerosis and improve the quality of life for patients through better-informed treatment strategies.
How similar studies have performed: Other similar registries have shown success in improving patient outcomes and understanding of chronic conditions, making this approach promising.
Eligibility criteria
Show full inclusion / exclusion criteria
Inclusion Criteria: * Persons with a confirmed Multiple Sclerosis Diagnosis * 18 years and older * Living in Switzerland or receiving MS care in Switzerland Exclusion Criteria: * Younger than 18 years * Not living in Switzerland and not receiving MS care in Switzerland
Where this trial is running
Zurich, Canton of Zurich
- University of Zurich; Epidemiology, Biostatistics & Prevention Institute — Zurich, Canton of Zurich, Switzerland (Recruiting)
Study contacts
- Principal investigator: Milo Puhan, MD PhD — University of Zurich
- Study coordinator: Milo Puhan, MD PhD
- Email: miloalan.puhan@uzh.ch
- Phone: ++41 (0)44 634 4610
How to participate
- Review the eligibility criteria above with your treating physician.
- Visit the official trial page on ClinicalTrials.gov for the most current contact information and recruitment status.
- Contact the listed study coordinator or principal investigator to request pre-screening. Pre-screening is free and never obligates you to enroll.