National database for rare skin cancers in France

French National Database of Rare Dermatological Cancers: Merkel Cell Carcinoma, Inoperable or Metastatic Basal Cell Carcinoma, Cutaneous Adnexal Carcinomas

Observational University Hospital, Lille · NCT03210935

This study is trying to gather information from patients with rare skin cancers in France to better understand these conditions and see how different treatments affect their outcomes.

Quick facts

Study typeObservational
Enrollment9000 (estimated)
SexAll
SponsorUniversity Hospital, Lille Academic / other
Locations34 sites (Amiens and 33 other locations)
Trial IDNCT03210935 on ClinicalTrials.gov

What this trial studies

This observational study aims to create a national cohort of patients with rare skin cancers, specifically Merkel cell carcinoma, advanced basal cell carcinoma requiring systemic treatment, and cutaneous adnexal carcinoma. It will collect comprehensive epidemiological, clinical, and socio-economic data from 37 French centers to better understand these conditions. The study will also identify new prognostic factors and evaluate the impact of various treatments on patient outcomes through a centralized database.

Who should consider this trial

Good fit: Ideal candidates include patients with histologically confirmed Merkel cell carcinoma, advanced basal cell carcinoma requiring systemic treatment, or cutaneous adnexal carcinoma.

Not a fit: Patients without the specified rare skin cancers or those who refuse participation will not benefit from this study.

Why it matters

Potential benefit: If successful, this study could enhance understanding of rare skin cancers and improve treatment strategies for affected patients.

How similar studies have performed: While there have been studies on individual types of skin cancers, this comprehensive national cohort approach for these specific rare cancers is relatively novel.

Eligibility criteria

Show full inclusion / exclusion criteria
Inclusion Criteria:

* Patients with histologically confirmed Merkel cell carcinoma, advanced basal cell carcinoma requiring systemic treatment, or cutaneous adnexal carcinoma

Exclusion Criteria:

* Subjects without Merkel cell carcinoma, advanced basal cell carcinoma requiring systemic treatment, or cutaneous adnexal carcinoma
* Patients refusal

Where this trial is running

Amiens and 33 other locations

Study contacts

How to participate

  1. Review the eligibility criteria above with your treating physician.
  2. Visit the official trial page on ClinicalTrials.gov for the most current contact information and recruitment status.
  3. Contact the listed study coordinator or principal investigator to request pre-screening. Pre-screening is free and never obligates you to enroll.
Conditions Adnexal Tumor of SkinMerkel Cell CarcinomaAdvanced Basal Cell Carcinoma Requiring Systemic TreatmentAdnexal cutaneous carcinomaMerkel cell carcinomaAdvanced basal cell carcinoma requiring systemic treatment
Last reviewed 2026-06-13 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.