Monitoring pregnancy and newborn outcomes in HIV-positive and HIV-negative women

Measuring Adverse Pregnancy and Newborn Congenital Outcomes: An IeDEA Collaboration Study

Observational Indiana University · NCT04405700

This study is trying to see how pregnancy and baby health outcomes differ between women with and without HIV to improve care for both groups.

Quick facts

Study typeObservational
Enrollment2800 (estimated)
SexFemale
SponsorIndiana University Academic / other
Locations1 site (Eldoret)
Trial IDNCT04405700 on ClinicalTrials.gov

What this trial studies

This study aims to develop a pharmacovigilance surveillance program to monitor adverse pregnancy and infant outcomes, including congenital abnormalities, among HIV-positive and HIV-negative women and their infants. It will utilize a mixed prospective and cross-sectional cohort design at health facilities in western Kenya. The study will analyze data to explore associations between antiretroviral treatment and pregnancy and infant outcomes, while also establishing standardized protocols for data exchange within the International Epidemiology Databases to Evaluate consortium. A Data Coordinating Center at Indiana University will facilitate data collection and analysis across multiple regions.

Who should consider this trial

Good fit: Ideal candidates include HIV-positive and HIV-negative pregnant women enrolled in antenatal care at the study site.

Not a fit: Patients with physical or mental disabilities that prevent informed consent may not benefit from this study.

Why it matters

Potential benefit: If successful, this study could improve understanding of the safety of antiretroviral treatments during pregnancy and their impact on newborn health.

How similar studies have performed: Other studies have shown success in pharmacovigilance approaches for monitoring pregnancy outcomes, indicating potential for this study's methodology.

Eligibility criteria

Show full inclusion / exclusion criteria
C1. Prospective recruitment of HIV+ and HIV- pregnant women enrolling in ANC at the site:

Inclusion criteria for women

1. Pregnant and enrolled in ANC at the study site;
2. Understands English or Swahili.

Exclusion criteria for women a. Any physical or mental disability that prevents the woman from providing informed consent

Inclusion criteria for infants

a. All infants at any gestational age who are born to enrolled women will be included Exclusion criteria for infants (none)

C2. Data collection for all deliveries at the site:

Inclusion criteria for women a. Woman delivers at the site and the delivery is registered at the site

Exclusion criteria for women (none)

Inclusion criteria for live/stillborn infants

a. Infant is delivered at the site and results in the infant/stillbirth being registered at the site

Exclusion criteria for infants (none)

C3. Photos/videos of infants with CAs:

Inclusion criteria for infants

1. The infant is live or stillborn at ≥ 24 weeks estimated gestational age
2. The infant has a suspected CA on surface exam

Exclusion criteria for infants (none)

Where this trial is running

Eldoret

How to participate

  1. Review the eligibility criteria above with your treating physician.
  2. Visit the official trial page on ClinicalTrials.gov for the most current contact information and recruitment status.
  3. Contact the listed study coordinator or principal investigator to request pre-screening. Pre-screening is free and never obligates you to enroll.
Conditions HIV/AIDSPregnancy RelatedCongenital DisordersNewborn Morbidity
Last reviewed 2026-06-13 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.