Monitoring Long QT Syndrome with Wearable Devices

Is this trial a fit for you?

A plain-English reading of the study's rules. Only the study team can confirm whether you qualify.

What this trial studies

This observational study investigates the effectiveness of wearable devices in monitoring patients diagnosed with Long QT syndrome. Participants will be equipped with these devices to track their heart activity and other relevant health metrics. The study aims to determine if continuous monitoring can improve patient outcomes and provide valuable data for managing this condition. Eligible participants must be 18 years or older and have a clinical diagnosis of Long QT syndrome.

Why it matters

Who can join: the full rules

Inclusion Criteria:

* Clinical diagnosis of Long QT Syndrome
* Aged 18 years or over
* Phone with iOS version 15 or Android OS 9.0 or higher
* Able and willing to provide informed consent

Exclusion Criteria:

* Unwilling or unable to give consent
* Ventricular pacing at recruitment
* Bundle branch block or pre-excitation at baseline

Where it's running

• Barts and London Hospital NHS Trust
  London, United Kingdom Recruiting

Study contacts

• Principal investigator: William J Young, MBBS, PhD — Queen Mary University of London and St Bartholomew's Hospital

Similar studies

Other studies for the same condition or treatment. Recruiting studies are listed first.

• AI-powered ECG tools to detect deadly heart rhythms and ICI-related myocarditis

  Researchers are testing AI-powered analysis of ECG data to see if it can help flag dangerous arrhythmias and myocarditis in people who may be affected by immune checkpoint inhibitors.

  Recruiting Groupe Hospitalier Pitie-Salpetriere · Paris · NCT07644715

• Registry for hereditary cardiovascular diseases in Brazil

  This study is trying to create a registry of Brazilian patients with hereditary heart diseases to see how common certain genetic changes are in people with these conditions.

  Recruiting at 27 sites Hospital do Coracao · Rio Branco, Acre and 26 other locations · NCT06546137

• Creating a database to understand the effects of KCNH2 gene variants in Long QT Syndrome

  This study is trying to create a database to help understand how changes in the KCNH2 gene affect people with Long QT Syndrome and improve their diagnosis and treatment.

  Recruiting at 2 sites Nantes University Hospital · Nantes, Loire-atlantique and 1 other locations · NCT06087367

• Long-term outcomes for patients with cardiac arrhythmias

  This study looks at how well treatments for heart rhythm problems work over time and what factors might affect their success for patients with conditions like atrial fibrillation and ventricular tachycardia.

  Recruiting Universitätsklinikum Hamburg-Eppendorf · Hamburg · NCT05521451

• Comparing direct and indirect methods for screening family members at risk for genetic conditions

  This study is testing two ways to reach out to family members at risk for Long QT Syndrome and Familial Hypercholesterolemia to see which method helps them get screened better, while also offering free genetic testing and counseling.

  Recruiting University of Maryland, Baltimore · Lancaster, Pennsylvania · NCT05348564

• Comparing continuous and intermittent heart monitoring methods

  This study is testing a new continuous heart monitoring patch to see if it works better than regular heart tests for patients with certain heart conditions who are taking medications that might cause problems.

  Recruiting Washington University School of Medicine · St Louis, Missouri · NCT04336644

How to take part

1. Review the eligibility criteria above with your treating physician.
2. Check the official listing on ClinicalTrials.gov for the latest contact details and recruitment status.
3. Contact the study coordinator or principal investigator to ask for pre-screening. Pre-screening is free and never obligates you to enroll.