Mapping tumor heterogeneity in VHL-related kidney cancer

Overtaking Intra and Inter Tumoral Heterogeneity In Von Hippel-Lindau Related Renal Cancer

Observational IRCCS San Raffaele · NCT06195150

This study is trying to understand the different types of kidney tumors in people with Von Hippel-Lindau syndrome to improve treatments and find better ways to fight the cancer.

Quick facts

Study typeObservational
Enrollment3 (estimated)
Ages18 Years to 99 Years
SexAll
SponsorIRCCS San Raffaele Academic / other
Locations1 site (Milan, MI)
Trial IDNCT06195150 on ClinicalTrials.gov

What this trial studies

This study aims to comprehensively map the intra and inter tumor heterogeneity of clear cell renal cell carcinoma (ccRCC) in patients with Von Hippel-Lindau (VHL) syndrome. It will utilize a combination of imaging techniques, histological analysis, and molecular profiling from multi-regional biopsies to decode the complexities of VHL-ccRCC. The study will also develop patient-derived organoids to test anti-tumor agents, enhancing diagnostic and therapeutic strategies for VHL patients. By integrating these methodologies, the research seeks to improve the understanding and treatment of ccRCC in the context of VHL syndrome.

Who should consider this trial

Good fit: Ideal candidates for this study are patients with VHL syndrome who have at least three kidney tumors larger than 3 cm that are to be surgically removed.

Not a fit: Patients without VHL syndrome or those with fewer than three kidney tumors may not benefit from this study.

Why it matters

Potential benefit: If successful, this study could lead to improved diagnostic tests and personalized treatment options for patients with VHL-related renal cancer.

How similar studies have performed: Other studies have shown success in mapping tumor heterogeneity using similar multi-omics approaches, suggesting potential for impactful findings in this area.

Eligibility criteria

Show full inclusion / exclusion criteria
Inclusion Criteria:

* VHL syndrome
* Presence of at least 3 kidney tumors larger that 3cm to be surgically removed

Exclusion Criteria:

* Absence of VHL
* Quantity of kidney tumors \< 3
* Absence of surgery performance

Where this trial is running

Milan, MI

Study contacts

How to participate

  1. Review the eligibility criteria above with your treating physician.
  2. Visit the official trial page on ClinicalTrials.gov for the most current contact information and recruitment status.
  3. Contact the listed study coordinator or principal investigator to request pre-screening. Pre-screening is free and never obligates you to enroll.
Conditions Clear Cell Renal Cell CarcinomaVHL Syndrome
Last reviewed 2026-06-13 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.