Long-term observation of severe eating disorders

A Longitudinal Study of Severe and Enduring Eating Disorders

Observational Uppsala University Hospital · NCT06752304

This study is tracking adolescents and adults with severe eating disorders over many years to see what factors affect their health and recovery.

Quick facts

Study typeObservational
Enrollment800 (estimated)
Ages14 Years and up
SexAll
SponsorUppsala University Hospital Academic / other
Locations1 site (Uppsala)
Trial IDNCT06752304 on ClinicalTrials.gov

What this trial studies

This observational longitudinal study aims to investigate the characteristics and factors associated with Severe and Enduring Eating Disorders (SEED) by following two cohorts: adolescents aged 14-17 and adults aged 18 and older. Researchers will collect data at multiple time points, including baseline, post-treatment, and at intervals of two, five, ten, and twenty years. Participants will undergo physical examinations, provide blood samples, and complete questionnaires, with caregivers involved for minors. The study focuses on clinical, psychological, and biological risk factors that may influence the development and persistence of eating disorders.

Who should consider this trial

Good fit: Ideal candidates include individuals aged 14 and older who meet the criteria for an eating disorder and are in need of treatment.

Not a fit: Patients requiring emergency care for eating disorder symptoms or those at high risk for suicide may not benefit from this study.

Why it matters

Potential benefit: If successful, this study could enhance understanding of severe eating disorders and inform more effective treatment strategies.

How similar studies have performed: While there have been studies on eating disorders, this specific longitudinal approach to SEED is relatively novel and underexplored.

Eligibility criteria

Show full inclusion / exclusion criteria
Inclusion criteria:

* found to meet the criteria for an eating disorder
* being in need of treatment
* having provided written informed consent (for minors, this includes consent from all caregivers and the minors themselves).

Exclusion criteria:

* Eating disorders symptoms in need of emergency care
* High risk for suicide
* An inability to respond to the questionnaires due to e.g., lack of knowledge in Swedish.

Where this trial is running

Uppsala

Study contacts

How to participate

  1. Review the eligibility criteria above with your treating physician.
  2. Visit the official trial page on ClinicalTrials.gov for the most current contact information and recruitment status.
  3. Contact the listed study coordinator or principal investigator to request pre-screening. Pre-screening is free and never obligates you to enroll.
Conditions Eating DisordersAnorexia NervosaBulimia NervosaBinge Eating DisorderOther Specified Feeding or Eating Disorder
Last reviewed 2026-06-13 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.