Clinical trial Recruiting at 1 site Observational Ages 14 and up

Long-term observation of severe eating disorders

Official title: A Longitudinal Study of Severe and Enduring Eating Disorders

Run by Uppsala University Hospital · NCT06752304 · Data updated 2026-11-12

This study is tracking adolescents and adults with severe eating disorders over many years to see what factors affect their health and recovery.

Quick facts

Study typeObservational
Ages14 Years and up
SexAll
Enrollment800 (estimated)
SponsorUppsala University Hospital
Academic / other
Locations1 site (Uppsala)
StatusRecruiting
StartedSeptember 1, 2024
Main results expectedDecember 31, 2029
Study endsDecember 2048
Registry record updatedDecember 31, 2024
Trial IDNCT06752304 on ClinicalTrials.gov

Is this trial a fit for you?

Likely a good fit

Ideal candidates include individuals aged 14 and older who meet the criteria for an eating disorder and are in need of treatment.

Probably not a fit

Patients requiring emergency care for eating disorder symptoms or those at high risk for suicide may not benefit from this study.

A plain-English reading of the study's rules. Only the study team can confirm whether you qualify.

What this trial studies

This observational longitudinal study aims to investigate the characteristics and factors associated with Severe and Enduring Eating Disorders (SEED) by following two cohorts: adolescents aged 14-17 and adults aged 18 and older. Researchers will collect data at multiple time points, including baseline, post-treatment, and at intervals of two, five, ten, and twenty years. Participants will undergo physical examinations, provide blood samples, and complete questionnaires, with caregivers involved for minors. The study focuses on clinical, psychological, and biological risk factors that may influence the development and persistence of eating disorders.

Why it matters

Potential benefit: If successful, this study could enhance understanding of severe eating disorders and inform more effective treatment strategies.

How similar studies have gone: While there have been studies on eating disorders, this specific longitudinal approach to SEED is relatively novel and underexplored.

Who can join: the full rules

Show full inclusion / exclusion criteria
Inclusion criteria:

* found to meet the criteria for an eating disorder
* being in need of treatment
* having provided written informed consent (for minors, this includes consent from all caregivers and the minors themselves).

Exclusion criteria:

* Eating disorders symptoms in need of emergency care
* High risk for suicide
* An inability to respond to the questionnaires due to e.g., lack of knowledge in Swedish.

Where it's running

  • Uppsala University Hospital
    Uppsala, Sweden
    Recruiting

Study contacts

Similar studies

Other studies for the same condition or treatment. Recruiting studies are listed first.

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  • An AI chatbot to help teens and young adults with eating disorders manage anxiety about weight gain

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  • New treatment program for adolescents with eating disorders

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    Recruiting Fundació Sant Joan de Déu · Barcelona · NCT06431854

  • Using AI and VR to help treat eating disorders

    This study is testing new virtual reality tools powered by artificial intelligence to see if they can help people with eating disorders like anorexia and bulimia feel better faster than traditional therapy.

    Recruiting Istituto per la Ricerca e l'Innovazione Biomedica · Messina, Italy · NCT06799962

  • Genetic study on eating disorders

    This study is trying to understand the genetic and environmental causes of eating disorders by gathering information from 20,000 people with different eating disorders and healthy individuals.

    Recruiting at 5 sites University of North Carolina, Chapel Hill · Chapel Hill, North Carolina and 4 other locations · NCT06594913

  • Long-term study on eating disorders

    This study is trying to understand eating disorders like Anorexia and Bulimia by looking at patients over time to find clues that could help improve treatments.

    Recruiting Mental Health Centre Copenhagen, Bispebjerg and Frederiksberg Hospital · Ballerup Municipality, Capitol Region · NCT03224091

How to take part

  1. Review the eligibility criteria above with your treating physician.
  2. Check the official listing on ClinicalTrials.gov for the latest contact details and recruitment status.
  3. Contact the study coordinator or principal investigator to ask for pre-screening. Pre-screening is free and never obligates you to enroll.
Last reviewed 2026-11-14 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.