Investigating genetic causes of severe obesity in young children

Study to Identify Rare Genetic Variants Causing Severe Early Childhood Obesity

Observational Columbia University · NCT01998750

This study is trying to find out if certain genes are linked to severe obesity in young children under six years old by looking at their health, eating habits, and family history.

Quick facts

Study typeObservational
Enrollment500 (estimated)
AgesN/A to 80 Years
SexAll
SponsorColumbia University Academic / other
Locations2 sites (Boston, Massachusetts and 1 other locations)
Trial IDNCT01998750 on ClinicalTrials.gov

What this trial studies

This observational study aims to explore the genetic factors contributing to severe early childhood obesity, specifically in children diagnosed before the age of six with a BMI above the 99th percentile. Participants, including both children and adults, will undergo a health and eating behavior assessment, a brief physical examination, and genetic testing through saliva or blood samples. Family members are also invited to participate to enhance the understanding of hereditary factors. The study will utilize next-generation sequencing to identify monogenic and syndromic causes of obesity.

Who should consider this trial

Good fit: Ideal candidates for this study are children diagnosed with severe early onset obesity before the age of six.

Not a fit: Patients with known genetic or endocrine causes of obesity, or those with certain medical histories such as prior malignancy or prolonged steroid use, may not benefit from this study.

Why it matters

Potential benefit: If successful, this study could lead to better understanding and management of severe early childhood obesity through genetic insights.

How similar studies have performed: Other studies investigating genetic causes of obesity have shown promise, indicating that this approach could yield valuable insights.

Eligibility criteria

Show full inclusion / exclusion criteria
Inclusion Criteria:

\- BMI \> 99th percentile documented at age \< 6 years of age

Exclusion Criteria:

* Known genetic causes of obesity
* Known Endocrine causes of obesity.
* Neurologic tumor, trauma or surgery
* Prior malignancy or transplant
* Known autoimmune diseases
* Edema of a known or unknown cause
* Prolonged steroid use.

Where this trial is running

Boston, Massachusetts and 1 other locations

Study contacts

How to participate

  1. Review the eligibility criteria above with your treating physician.
  2. Visit the official trial page on ClinicalTrials.gov for the most current contact information and recruitment status.
  3. Contact the listed study coordinator or principal investigator to request pre-screening. Pre-screening is free and never obligates you to enroll.
Conditions Obesityobesitygeneticsearly-onsetchildhood
Last reviewed 2026-06-13 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.