Integrating care for children with special health care needs
Evaluating Care Integration for Children with Special Health Care Needs
King's College London · NCT05919589
This study is testing a new support program for families of children with special health care needs to see if it helps them get better care and services.
Quick facts
| Study type | Observational |
|---|---|
| Enrollment | 50 (estimated) |
| Ages | 18 Years and up |
| Sex | All |
| Sponsor | King's College London (other) |
| Locations | 1 site (London) |
| Trial ID | NCT05919589 on ClinicalTrials.gov |
What this trial studies
This project aims to evaluate the integration of care for children with special health care needs (CSHCN) by implementing a support package that includes family support workers and navigation packs for services. The study will gather qualitative data through semi-structured interviews with parents, caregivers, and professionals involved in the care of CSHCN. By exploring their views and experiences, the research seeks to understand the effectiveness of integrated care models and identify areas for improvement. This initiative responds to a significant gap in the literature regarding integrated care for this vulnerable population.
Who should consider this trial
Good fit: Ideal candidates for this study are parents or caregivers of children with special health care needs, as well as staff and professionals involved in their care.
Not a fit: Patients who may not benefit from this study include those under 18 years of age or individuals who cannot communicate effectively in English.
Why it matters
Potential benefit: If successful, this study could lead to improved care coordination and better quality of life for children with special health care needs and their families.
How similar studies have performed: While integrated care models have been proposed, few have been rigorously evaluated for children with special health care needs, making this approach relatively novel.
Eligibility criteria
Show full inclusion / exclusion criteria
Inclusion Criteria: * Parents/care givers of CSHCN * Staff and professional stakeholders involved (either directly or indirectly) with CSHCN Exclusion Criteria: * Participants under the age of 18 years * Participants who are unable to speak and understand English
Where this trial is running
London
- St Thomas' Hospital — London, United Kingdom (RECRUITING)
Study contacts
- Study coordinator: Ingrid Wolfe, PhD
- Email: ingrid.wolfe@kcl.ac.uk
- Phone: +447740148900
How to participate
- Review the eligibility criteria above with your treating physician.
- Visit the official trial page on ClinicalTrials.gov for the most current contact information and recruitment status.
- Contact the listed study coordinator or principal investigator to request pre-screening. Pre-screening is free and never obligates you to enroll.
Conditions: Parents, Staff Attitude, Healthy, Children with special healthcare needs, CSHCN, Carer, Professionals, Staff