Improving treatment recommendations for children with retinoblastoma in Africa

Therapeutic Recommendations For The Treatment Of Children With A Retinoblastoma

French Africa Pediatric Oncology Group · NCT04425434

This study is trying to see if better treatment recommendations and early diagnosis can help improve survival rates for children with retinoblastoma in Africa.

Quick facts

Study typeObservational
Enrollment3000 (estimated)
AgesN/A to 18 Years
SexAll
SponsorFrench Africa Pediatric Oncology Group (other)
Locations7 sites (Ouagadougou and 6 other locations)
Trial IDNCT04425434 on ClinicalTrials.gov

What this trial studies

This observational study aims to enhance the outcomes for children diagnosed with retinoblastoma, particularly in low-income countries in Africa. By focusing on early diagnosis and the implementation of therapeutic recommendations, the study seeks to demonstrate that timely intervention can significantly improve survival rates. Data will be collected on the stage of the disease, treatment methods, and patient outcomes to analyze the effectiveness of these recommendations.

Who should consider this trial

Good fit: Ideal candidates include children with unilateral or bilateral intraocular retinoblastoma or unilateral extraocular intraorbital retinoblastoma.

Not a fit: Patients with advanced disease stages, such as externalized tumor masses or significant intracranial extension, may not benefit from this study.

Why it matters

Potential benefit: If successful, this study could lead to improved survival rates for children with retinoblastoma in low-income regions.

How similar studies have performed: While there have been successful studies in high-income countries, this approach is novel in the context of low-income countries and has not been extensively tested.

Eligibility criteria

Show full inclusion / exclusion criteria
Inclusion Criteria:

* Unilateral intraocular Retinoblastoma (RB)
* Unilateral extraocular intraorbital (RB)
* Bilateral intraocular (RB)
* bilateral intraocular (RB) on one side and extraocular but intraorbital on the other side.

Exclusion Criteria:

* Externalized tumor mass
* massive extension to optic nerve up to optical channeltumor
* intracranial extension leptomeninges
* cerebral parenchyma
* extension to regional lymph nodes and/or remote metastases.
* cerebrospinal fluid involvement.
* Trilateral RB
* Incapacity to followed the whole treatement.

Where this trial is running

Ouagadougou and 6 other locations

Study contacts

How to participate

  1. Review the eligibility criteria above with your treating physician.
  2. Visit the official trial page on ClinicalTrials.gov for the most current contact information and recruitment status.
  3. Contact the listed study coordinator or principal investigator to request pre-screening. Pre-screening is free and never obligates you to enroll.

View on ClinicalTrials.gov →

Conditions: Retinoblastoma

Last reviewed 2026-05-15 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.