Improving family-centered telehealth for pediatric rehabilitation

Training Intervention and Program of Support (TIPS) for Fostering the Adoption of Family-centred Telehealth Interventions in Pediatric Rehabilitation: A Pan-Canadian Implementation-effectiveness Study

This study is testing a new way to improve telehealth services for children with disabilities and their families to make rehabilitation easier and more effective.

Quick facts

• Phase: NA
• Study type: Interventional
• Enrollment: 2360 (estimated)
• Ages: 18 Years and up
• Sex: All
• Sponsor: Université de Sherbrooke (other)
• Locations: 3 sites (Chicoutimi, Quebec and 2 other locations)
• Trial ID: NCT05312827 on ClinicalTrials.gov

What this trial studies

This study focuses on enhancing access to family-centered telehealth services for children with disabilities and their families. It addresses the barriers to timely rehabilitation services, particularly exacerbated by the COVID-19 pandemic, by implementing a Training Intervention and Program of Support (TIPS) for therapists. The goal is to foster the adoption of telehealth interventions that prioritize family involvement and satisfaction in pediatric rehabilitation. By integrating telehealth into Family Centred Services, the study aims to improve children's developmental outcomes and reduce stress for families.

Who should consider this trial

Good fit: Ideal candidates include children aged 0-12 years with disabilities and their parents or caregivers who have received rehabilitation services in the past three months.

Not a fit: Patients who do not have access to telehealth services or prefer in-person rehabilitation may not benefit from this study.

Why it matters

Potential benefit: If successful, this approach could significantly enhance access to rehabilitation services for children with disabilities and improve family satisfaction.

How similar studies have performed: Previous studies have shown that telehealth can effectively improve access and outcomes in pediatric rehabilitation, indicating a promising approach.

Eligibility criteria

Inclusion/Exclusion Criteria:

Managers:

* Person responsible for rehabilitation services at the site, or their delegate

Therapists:

* PTs, OTs, SLPs providing outpatient pediatric rehabilitation services to children aged 0-12 years in each site, recruited via the managers and interested in utilizing FCT

Parents:

* Parents or caregivers who received services (either in-person, virtually, or both) from at least one participating therapist in the previous 3 months

Therapist champion:

* Therapist selected based on their telehealth experience and on peer recognition within their organization.

Parent/patient-partners:

* Recruited from family, parent or patient advisory committees at the participating sites or, in the absence of such initiatives, from regional, provincial, or national patient engagement programs.

All:

* Can speak French or English

Where this trial is running

Chicoutimi, Quebec and 2 other locations

• Centre intégré universitaire de santé et de services sociaux du Saguenay-Lac-Saint-Jean — Chicoutimi, Quebec, Canada (NOT_YET_RECRUITING)
• Centre intégré universitaire de santé et des services sociaux de l'Estrie - Centre hospitalier universitaire de Sherbrooke — Sherbrooke, Quebec, Canada (RECRUITING)
• Centre intégré universitaire de santé et de services sociaux de la Mauricie-et-du-Centre-du-Québec — Trois-Rivières, Quebec, Canada (RECRUITING)

Study contacts

• Principal investigator: Chantal Camden, PhD — École de réadaptation, CRCHUS, Université de Sherbrooke
• Study coordinator: Chantal Camden, PhD

Conditions: Telerehabilitation, telehealth, family-centred, pediatric rehabilitation