Exploring the experiences of patients with high-grade glioma and their caregivers
Experiences and Needs of Patients With a High-grade Glioma and Their Caregivers
This study is trying to learn about the experiences and needs of patients with high-grade glioma and their caregivers to help improve support and care for them.
Quick facts
| Study type | Observational |
|---|---|
| Enrollment | 30 (estimated) |
| Ages | 18 Years and up |
| Sex | All |
| Sponsor | Universitaire Ziekenhuizen KU Leuven Academic / other |
| Locations | 1 site (Leuven, Vlaams-Brabant) |
| Trial ID | NCT01638130 on ClinicalTrials.gov |
What this trial studies
This observational study aims to understand the experiences and needs of patients diagnosed with high-grade glioma and their caregivers through semi-structured interviews. The research employs a Grounded-Theory approach to analyze the qualitative data collected from these interviews. By focusing on the perspectives of both patients and caregivers, the study seeks to identify common challenges and support needs. The findings may inform better care strategies and support systems for this patient population.
Who should consider this trial
Good fit: Ideal candidates include adults with a primary high-grade glioma who have undergone chemotherapy, as well as their caregivers.
Not a fit: Patients with cerebral metastases or those unable to participate in interviews due to emotional or cognitive issues may not benefit from this study.
Why it matters
Potential benefit: If successful, this study could enhance the understanding of patient and caregiver needs, leading to improved support and care strategies.
How similar studies have performed: While qualitative studies exploring patient experiences are common, this specific focus on high-grade glioma patients and their caregivers may provide novel insights.
Eligibility criteria
Show full inclusion / exclusion criteria
Inclusion Criteria: * Adults * Patients with a primary high-grade glioma who are treated with chemo or were treated with chemo * Caregivers of patients with a primary high-grade glioma who are treated with chemo or were treated with chemo * Able to be interviewed * Dutch Exclusion Criteria: * Patients with cerebral metastases * Patients and caregivers who withdraw their informed consent * Emotionally and cognitive not being able to be interviewed
Where this trial is running
Leuven, Vlaams-Brabant
- UZ Leuven — Leuven, Vlaams-Brabant, Belgium (Recruiting)
Study contacts
- Study coordinator: Wendy Sterckx
- Email: wendy.sterckx@uzleuven.be
How to participate
- Review the eligibility criteria above with your treating physician.
- Visit the official trial page on ClinicalTrials.gov for the most current contact information and recruitment status.
- Contact the listed study coordinator or principal investigator to request pre-screening. Pre-screening is free and never obligates you to enroll.