Exploring the experiences of children who had Guillain-Barré Syndrome.
Official title: Experience of Guillain Barré Syndrome in Childhood: A French Multicentric Qualitative Study
Run by University Hospital, Toulouse · NCT06940908 · Data updated 2026-11-12
This study is trying to learn about the feelings and experiences of children who had Guillain-Barré Syndrome a few years ago to better understand how it affects their lives.
Quick facts
| Study type | Observational |
|---|---|
| Ages | 10 Years to 18 Years |
| Sex | All |
| Enrollment | 25 (estimated) |
| Sponsor | University Hospital, Toulouse Academic / other |
| Locations | 2 sites (Montpellier, Occitanie and 1 other locations) |
| Status | Recruiting |
| Started | May 5, 2025 |
| Main results expected | June 1, 2027 |
| Study ends | June 1, 2027 |
| Registry record updated | May 8, 2026 |
| Trial ID | NCT06940908 on ClinicalTrials.gov |
Is this trial a fit for you?
✓Likely a good fit
Ideal candidates are children aged 10 years or older who were diagnosed with GBS two to five years prior.
✕Probably not a fit
Patients with other neurological conditions or severe cognitive impairments may not benefit from this study.
A plain-English reading of the study's rules. Only the study team can confirm whether you qualify.
What this trial studies
This observational study aims to understand the lived experiences and psychological effects on children who were diagnosed with Guillain-Barré Syndrome (GBS) two to five years ago. It involves conducting semi-structured interviews with children aged 10 and older to gather qualitative data about their illness and recovery experiences. Participants will also complete a screening questionnaire to assess depressive symptoms. The study is being conducted at two pediatric neurology centers in France, focusing on the long-term psychosocial impacts of GBS.
Why it matters
Potential benefit: If successful, this study could provide insights into the psychological needs of children recovering from GBS, leading to improved support and interventions.
How similar studies have gone: While qualitative studies on GBS are limited, similar approaches in other chronic conditions have shown success in understanding patient experiences.
Who can join: the full rules
Show full inclusion / exclusion criteria
Inclusion Criteria: * Children or adolescents aged 10 years or older at the time of the interview * History of Guillain-Barré syndrome (GBS) diagnosed in childhood * Time since acute episode: between 2 and 5 years * Sufficient mastery of the French language to participate in a semi-structured interview * Consent of the participant and, for minors, parental consent Exclusion Criteria: * Presence of a neurological disease other than GBS that may interfere with participation or interpretation of data * Severe cognitive impairment preventing the child or adolescent from engaging in the interview
Where it's running
-
University Hospital Toulouse
Toulouse, Occitanie, France Recruiting -
University Hospital of Montpellier
Montpellier, Occitanie, France Not yet recruiting
Study contacts
- Study coordinator: Bastien ESTUBLIER, MD
- Email: estublier.b@chu-toulouse.fr
- Phone: 33 5 34 55 85 75
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How to take part
- Review the eligibility criteria above with your treating physician.
- Check the official listing on ClinicalTrials.gov for the latest contact details and recruitment status.
- Contact the study coordinator or principal investigator to ask for pre-screening. Pre-screening is free and never obligates you to enroll.