Evaluation of follow-up care for adults with esophageal atresia

Is this trial a fit for you?

A plain-English reading of the study's rules. Only the study team can confirm whether you qualify.

What this trial studies

This study evaluates the outcomes of a multidisciplinary follow-up program for adult patients with esophageal atresia initiated at Hôpital Saint-Louis. The program aims to provide comprehensive medical, psychological, and social support while empowering patients to manage their own care. Over a three-year period, the study will analyze various somatic and psychosocial factors to assess the effectiveness of this initiative in improving the quality of life for these individuals. It is the first to specifically address post-traumatic stress disorder (PTSD) in this patient population.

Why it matters

Who can join: the full rules

Inclusion Criteria:

* Patients with esophageal atresia
* Aged 18 to 30
* Followed at Hôpital Saint Louis
* Informed and not opposed to the study
* Patients affiliated to a social security scheme

Exclusion Criteria:

* Inability to answer questionnaires
* Patients under guardianship
* Patients under AME (Aide Médicale d'Etat in France)

Where it's running

• Hopital Saint Louis
  Paris, France Recruiting

Study contacts

• Study coordinator: Pierre Cattan, MD PhD
• Email: pierre.cattan@aphp.fr
• Phone: 142499381

Similar studies

Other studies for the same condition or treatment. Recruiting studies are listed first.

• Balloon inflation time for esophageal narrowing after atresia repair

  This trial will try different balloon inflation times during endoscopic dilation to see which works best for children with narrowing after esophageal atresia repair.

  Recruiting at 2 sites Boston Children's Hospital · Boston, Massachusetts and 1 other locations · NCT07100379

• Comparing physical health in children with esophageal atresia and healthy peers

  This study looks at how the physical health of children with esophageal atresia compares to that of healthy kids to see how the condition affects things like strength, exercise, and overall well-being.

  Recruiting Hacettepe University · Ankara, Ankara · NCT06975982

• Long-term outcomes of adolescents with esophageal atresia

  This study is trying to learn about the long-term health of teenagers who were born with esophageal atresia by collecting medical data and samples to see how they are doing after their surgeries.

  Recruiting at 15 sites University Hospital, Lille · Lille, Nord and 32 other locations · NCT05995171

• Camera-based Endoscopy to Manage Airway in Neonates with Tracheoesophageal Fistula

  This observation compares rigid tracheoscopy with flexible tracheo-video-endoscopy in newborns needing pre-repair airway assessment for tracheoesophageal fistula.

  Recruiting Papa Giovanni XXIII Hospital · Bergamo, Italy · NCT07687628

• How being told before versus after birth affects parents' post‑traumatic reactions after their baby's esophageal atresia surgery

  The study will see if parents who learn about their baby's esophageal atresia before birth have different levels of post‑traumatic reactions than parents who learn after birth, focusing mainly on mothers (with fathers invited to participate) of children aged 12–24 months who had neonatal surgery.

  Recruiting University Hospital, Lille · Lille · NCT04911036

How to take part

1. Review the eligibility criteria above with your treating physician.
2. Check the official listing on ClinicalTrials.gov for the latest contact details and recruitment status.
3. Contact the study coordinator or principal investigator to ask for pre-screening. Pre-screening is free and never obligates you to enroll.