Evaluation of a care program for adults with childhood-onset disabilities

Is this trial a fit for you?

A plain-English reading of the study's rules. Only the study team can confirm whether you qualify.

What this trial studies

This observational study evaluates the Transitional and Lifelong Care (TLC) program designed for youth and adults with childhood-onset disabilities, primarily focusing on those with cerebral palsy, spina bifida, and developmental disabilities. The TLC program aims to address health inequities faced by this population during their transition from pediatric to adult healthcare services by providing coordinated management of their mental, social, and physical health needs. The study will assess the effectiveness of the TLC model in reducing barriers to care and improving health outcomes for these individuals.

Why it matters

Who can join: the full rules

Inclusion Criteria:

Each participant dyad will consist of one person, of either sex and gender, who is over the age of 21 years with a childhood-onset disability, and the primary caregiver (based on contact hours) or support person, of either sex and gender, involved in their care. In cases where the patient participant is independent with care, a spouse or family member may still participate in the caregiver portion of the study.

2\. Patient participants will have continuously resided in Ontario during the years of 2015 to 2020 to facilitate full data retrieval from the administrative dataset.

3\. Healthcare providers, of any discipline, who provide care to adults with childhood-onset conditions in the TLC program.

Exclusion Criteria:

Patient participants will be ineligible if they are in a phase of deterioration associated with a progressive health condition identified either personally or by the caregiver participant.

Where it's running

• Parkwood Institute
  London, Ontario, Canada Recruiting

Study contacts

• Principal investigator: Laura K Brunton, PhD — Western University
• Study coordinator: Laura K Brunton, PhD
• Email: lbrunto3@uwo.ca
• Phone: 15196612111

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How to take part

1. Review the eligibility criteria above with your treating physician.
2. Check the official listing on ClinicalTrials.gov for the latest contact details and recruitment status.
3. Contact the study coordinator or principal investigator to ask for pre-screening. Pre-screening is free and never obligates you to enroll.