Evaluating Metreleptin for Young Children with Lipodystrophy

Open-label, Phase 3b Study to Evaluate Effectiveness, Safety and Pharmacokinetic Parameters of Metreleptin in Patients Under 6 Years of Age With Generalised Lipodystrophy and Associated Diabetes Mellitus and/or Hypertriglyceridaemia

PHASE3 · Amryt Pharma · NCT06502990

This study is testing if a medication called metreleptin can help young children with a rare condition called lipodystrophy and its related health issues.

Quick facts

PhasePHASE3
Study typeInterventional
Enrollment15 (estimated)
AgesN/A to 5 Years
SexAll
SponsorAmryt Pharma (industry)
Locations12 sites (Leuven and 11 other locations)
Trial IDNCT06502990 on ClinicalTrials.gov

What this trial studies

This open-label, Phase 3b study aims to assess the effectiveness, safety, and pharmacokinetics of metreleptin in children under 6 years of age diagnosed with generalized lipodystrophy, along with associated conditions such as diabetes mellitus and hypertriglyceridemia. The study will involve administering metreleptin to treatment-naive patients to gather data on its impact. The trial is designed to provide insights into how this treatment can help manage the symptoms and complications of this rare condition in a vulnerable population.

Who should consider this trial

Good fit: Ideal candidates for this study are children under 6 years of age with a confirmed diagnosis of generalized lipodystrophy who have not previously received metreleptin treatment.

Not a fit: Patients weighing less than 9 kg at screening will not benefit from this study.

Why it matters

Potential benefit: If successful, this treatment could significantly improve metabolic control and quality of life for young patients with generalized lipodystrophy.

How similar studies have performed: While this approach is relatively novel, previous studies on metreleptin in older populations have shown promising results, suggesting potential for success in this younger demographic.

Eligibility criteria

Show full inclusion / exclusion criteria
Inclusion Criteria:

* Confirmed diagnosis of Generalised Lipodystrophy
* Metreleptin treatment naive

Exclusion Criteria:

* Weight \<9 kg at Screening (Visit 1)

Where this trial is running

Leuven and 11 other locations

Study contacts

How to participate

  1. Review the eligibility criteria above with your treating physician.
  2. Visit the official trial page on ClinicalTrials.gov for the most current contact information and recruitment status.
  3. Contact the listed study coordinator or principal investigator to request pre-screening. Pre-screening is free and never obligates you to enroll.

View on ClinicalTrials.gov →

Conditions: Generalized Lipodystrophy, Metreleptin

Last reviewed 2026-05-15 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.