Assessing quality of life in patients with cutaneous lymphoma
Assessment of Quality of Life in Cutaneous Lymphoma Patients Using the Skindex29
This study looks at how living with cutaneous lymphoma affects adults' quality of life and what support they might need to feel better.
Quick facts
| Study type | Observational |
|---|---|
| Enrollment | 1250 (estimated) |
| Ages | 18 Years and up |
| Sex | All |
| Sponsor | City of Hope Medical Center Academic / other |
| Locations | 1 site (Duarte, California) |
| Trial ID | NCT04670874 on ClinicalTrials.gov |
What this trial studies
This observational study evaluates the quality of life in adult patients diagnosed with cutaneous lymphoma using the Skindex-29 questionnaire. It aims to identify the psychosocial needs of patients, assess the burden of pruritus, and correlate quality of life with demographic and clinical factors. Additionally, the study tracks patients' understanding of their diagnosis and their need for resources related to their care. By gathering this information, the study seeks to improve the overall quality of life for individuals affected by this rare type of cancer.
Who should consider this trial
Good fit: Ideal candidates for this study are adults with a presumed or confirmed diagnosis of cutaneous lymphoma.
Not a fit: Patients without a diagnosis of cutaneous lymphoma or those who do not agree to participate in the research may not benefit from this study.
Why it matters
Potential benefit: If successful, this study could lead to improved support and resources for patients with cutaneous lymphoma, enhancing their quality of life.
How similar studies have performed: While there have been studies assessing quality of life in cancer patients, this specific focus on cutaneous lymphoma and the use of the Skindex-29 questionnaire is relatively novel.
Eligibility criteria
Show full inclusion / exclusion criteria
Inclusion Criteria: * Agreement to participate in the research study * Presumed or confirmed diagnosis of CL
Where this trial is running
Duarte, California
- City of Hope Medical Center — Duarte, California, United States (Recruiting)
Study contacts
- Principal investigator: Christiane Querfeld — City of Hope Medical Center
How to participate
- Review the eligibility criteria above with your treating physician.
- Visit the official trial page on ClinicalTrials.gov for the most current contact information and recruitment status.
- Contact the listed study coordinator or principal investigator to request pre-screening. Pre-screening is free and never obligates you to enroll.