Assessing health and quality of life in retinoblastoma survivors
Retinoblastoma Survivor Study: Assessment of General Health and Quality of Life
This study looks at the health and quality of life of adults who had retinoblastoma as kids to see how their past treatment affects them now.
Quick facts
| Study type | Observational |
|---|---|
| Enrollment | 1000 (estimated) |
| Ages | 18 Years and up |
| Sex | All |
| Sponsor | Memorial Sloan Kettering Cancer Center Academic / other |
| Locations | 1 site (New York, New York) |
| Trial ID | NCT00639301 on ClinicalTrials.gov |
What this trial studies
This observational study aims to evaluate the general health and quality of life of adults who were diagnosed with retinoblastoma during childhood. Participants will complete questionnaires that assess their physical health, emotional well-being, and daily functioning. The findings from this study are intended to enhance care for future retinoblastoma patients and improve follow-up care for survivors. By understanding the long-term effects of retinoblastoma treatment, the study seeks to inform better healthcare practices.
Who should consider this trial
Good fit: Ideal candidates are adults who were diagnosed with retinoblastoma at any age and have completed their treatment at least five years prior.
Not a fit: Patients who were never diagnosed with retinoblastoma or those who have not completed their treatment may not benefit from this study.
Why it matters
Potential benefit: If successful, this study could lead to improved care strategies for both current and future retinoblastoma patients.
How similar studies have performed: Other studies focusing on the quality of life in cancer survivors have shown success, indicating that this approach is both relevant and valuable.
Eligibility criteria
Show full inclusion / exclusion criteria
Inclusion Criteria: * Patient diagnosed with retinoblastoma at any age * At least five years from completion of all retinoblastoma-directed therapy * Able to provide informed consent and/or assent, if indicated
Where this trial is running
New York, New York
- Memorial Sloan Kettering Cancer Center — New York, New York, United States (Recruiting)
Study contacts
- Principal investigator: Danielle Novetsky Friedman, MD — Memorial Sloan Kettering Cancer Center
- Study coordinator: Danielle Novetsky Friedman, MD
- Phone: 212-639-7376
How to participate
- Review the eligibility criteria above with your treating physician.
- Visit the official trial page on ClinicalTrials.gov for the most current contact information and recruitment status.
- Contact the listed study coordinator or principal investigator to request pre-screening. Pre-screening is free and never obligates you to enroll.