A patient-powered network for multiple sclerosis research
IConquerMS™ - a Patient-Powered Research Network for Multiple Sclerosis
This study invites people with multiple sclerosis and their families to share their health experiences online to help researchers learn more about the disease and improve treatments.
Quick facts
| Study type | Observational |
|---|---|
| Enrollment | 20000 (estimated) |
| Sex | All |
| Sponsor | Accelerated Cure Project for Multiple Sclerosis Academic / other |
| Locations | 1 site (Waltham, Massachusetts) |
| Trial ID | NCT02486562 on ClinicalTrials.gov |
What this trial studies
iConquerMS™ is an initiative designed to empower individuals with multiple sclerosis (MS) by allowing them to contribute their health data and insights to enhance MS research. The project aims to establish a Multiple Sclerosis Patient-Powered Research Network (MS-PPRN) with a goal of enrolling at least 20,000 participants who will share their experiences and health information. This data will be accessible to researchers investigating MS and related conditions, facilitating the exploration of the disease's causes, treatments, and other relevant topics. The study is conducted online, welcoming not only individuals with MS but also their caregivers and family members.
Who should consider this trial
Good fit: Ideal candidates include adults with multiple sclerosis, children and teens with MS, and their caregivers.
Not a fit: Patients who are unwilling or unable to provide informed consent may not benefit from this study.
Why it matters
Potential benefit: If successful, this initiative could significantly advance the understanding and treatment of multiple sclerosis through comprehensive patient data.
How similar studies have performed: Other patient-powered research networks have shown success in advancing research, indicating a promising approach for this initiative.
Eligibility criteria
Show full inclusion / exclusion criteria
Inclusion Criteria: * 21 years of age or older at the time of informed consent or under 21 with parental consent and participant assent. Exclusion Criteria: * Unwilling or unable to provide informed consent.
Where this trial is running
Waltham, Massachusetts
- Accelerated Cure Project — Waltham, Massachusetts, United States (Recruiting)
Study contacts
- Study coordinator: Sara Loud, MSEE, MBA
- Email: sloud@acceleratedcure.org
- Phone: 781-487-0032
How to participate
- Review the eligibility criteria above with your treating physician.
- Visit the official trial page on ClinicalTrials.gov for the most current contact information and recruitment status.
- Contact the listed study coordinator or principal investigator to request pre-screening. Pre-screening is free and never obligates you to enroll.