A community-based registry for breast cancer patients
ShareForCures: Susan G. Komen's People-powered, Data-driven Breast Cancer Research Registry
This study is trying to gather information from a wide range of breast cancer patients to better understand the disease and improve care for everyone, especially those from underrepresented communities.
Quick facts
| Study type | Observational |
|---|---|
| Enrollment | 200000 (estimated) |
| Ages | 18 Years and up |
| Sex | All |
| Sponsor | Susan G. Komen Breast Cancer Foundation Academic / other |
| Locations | 1 site (Dallas, Texas) |
| Trial ID | NCT05654246 on ClinicalTrials.gov |
What this trial studies
ShareForCures (SFC) is a community-based participatory research registry aimed at engaging a diverse population of breast cancer patients across the United States. The study seeks to collect clinical, biological, socio-behavioral, and other data from up to 200,000 individuals diagnosed with breast cancer, particularly focusing on minoritized and historically marginalized communities. By ensuring a representative dataset, researchers hope to gain a better understanding of breast cancer and improve scientific advances and care for all patients.
Who should consider this trial
Good fit: Ideal candidates for this study are individuals aged 18 and older who have been diagnosed with breast cancer and reside in the United States.
Not a fit: Patients under 18 years old or those without a breast cancer diagnosis will not benefit from this study.
Why it matters
Potential benefit: If successful, this initiative could lead to more inclusive and effective breast cancer treatments and care strategies.
How similar studies have performed: Other studies focusing on diverse patient registries have shown success in improving research outcomes, making this approach both relevant and promising.
Eligibility criteria
Show full inclusion / exclusion criteria
Inclusion Criteria: * Individuals must be at least 18 years old. (Individuals in Alabama and Nebraska must be over 19 and individuals in Mississippi and Pennsylvania must be over 21 to participate). * Individuals must have been diagnosed with cancer originating (or is suspected to originate) from the breast. * Individuals must be currently residing in the United States or a territory of the United States. * Individuals must be able to read and understand English. Exclusion Criteria: * Individuals under the age of 18 years. (Individuals in Alabama and Nebraska under 19 and individuals in Mississippi and Pennsylvania under 21 are not eligible to participate). * Individuals without a diagnosis of breast cancer. * Individuals who are not residing in the United States or a territory of the United States. * Individuals unable to read and understand English.
Where this trial is running
Dallas, Texas
- Susan G. Komen — Dallas, Texas, United States (Recruiting)
Study contacts
- Principal investigator: Jerome Jourquin, Ph.D., M.S. — Susan G. Komen
- Study coordinator: Jerome Jourquin, Ph.D., M.S.
- Email: JJourquin@komen.org
- Phone: 1-877-465-6636
How to participate
- Review the eligibility criteria above with your treating physician.
- Visit the official trial page on ClinicalTrials.gov for the most current contact information and recruitment status.
- Contact the listed study coordinator or principal investigator to request pre-screening. Pre-screening is free and never obligates you to enroll.