World Trade Center Health Registry: continuing to track and improve long-term health after 9/11
Official title: Extension of the World Trade Center Health Registry
Funded at New York City Health/mental Hygiene · NIH-11503105 · Data updated 2026-11-12
A large ongoing registry study will keep following tens of thousands of people affected by 9/11 to understand long-term health, mental health, and care needs and to help guide health programs.
Quick facts
| Grant type | NIH-funded research |
|---|---|
| Study type | NIH-funded research |
| Funding institution | New York City Health/mental Hygiene NIH-funded |
| Lab location | 1 site (New York, United States) |
| Project start | September 1, 2026 |
| Project end | August 31, 2031 |
| Funding year | 2026 |
| Award (this year) | $11,862,702 |
| NIH project number | 2U50OH009739-18 |
| Project ID | NIH-11503105 on NIH RePORTER |
Who could benefit from this research
✓Could help
Individuals who were involved in 9/11 rescue/recovery work or who lived, worked, or studied in lower Manhattan on 9/11/2001 and are enrolled or eligible for the WTC Health Registry.
✕Less likely to help
If you are not connected to the 9/11-affected populations or not part of the Registry, you would not directly benefit from this study.
What this research studies
This grant funds the continuation of the World Trade Center Health Registry, which has been monitoring more than 71,000 individuals affected by 9/11. Researchers will conduct follow-up surveys, analyze health trends over time, and share de-identified data with other scientists to improve understanding of long-term outcomes. The project also supports outreach to enrollees and collaboration with WTC Health Program entities to inform clinical practice and policy. Participants can expect ongoing opportunities to contribute data or be contacted for future studies related to 9/11 health effects.
Why it matters
Potential benefit: If successful, the work could improve health monitoring, inform treatments, and shape policies for disaster-related health care.
How similar studies have gone: The Registry has produced 207 peer-reviewed publications and informed policy, suggesting continued value from ongoing follow-up and data sharing.
Where this research is happening
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New York City Health/mental Hygiene
New York, United States Active
Researchers
- Principal investigator: Farfel, Mark R — New York City Health/mental Hygiene
- Study coordinator: Farfel, Mark R
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.