Why some people with epilepsy don't start breathing again after seizures

Autoresuscitation and SUDEP

NIH-funded research Creighton University · NIH-11285486

This project looks at how the body's breathing-restart reflex fails after severe seizures in people with epilepsy who are at risk for sudden unexpected death (SUDEP).

Quick facts

Grant typeR01 grant
Study typeNIH-funded research
Funding institutionCreighton University NIH-funded
Lab location1 site (Omaha, United States)
Project IDNIH-11285486 on NIH RePORTER

What this research studies

If you have epilepsy, the researchers want to understand why breathing sometimes doesn't come back after a big convulsive seizure. They will use animal models and brainstem breathing-neuron measurements to trace how blood gas changes and seizure events affect the reflex that restarts breathing (autoresuscitation). The team will look for molecular and network changes that make this reflex weaker and test interventions that might restore it. Their goal is to find targets that could lead to treatments preventing terminal apnea after seizures.

Who could benefit from this research

Good fit: The findings would be most relevant to people with epilepsy who have frequent or severe generalized convulsive seizures and are considered at higher risk for SUDEP.

Not a fit: People whose seizures are well controlled or who do not experience generalized convulsive seizures may see little direct benefit from this project in the short term.

Why it matters

Potential benefit: If successful, this work could point to new ways to strengthen the breathing-restart response after seizures and reduce deaths from SUDEP.

How similar studies have performed: Clinical case series and animal work have linked breathing and blood-gas failure to SUDEP, but directly targeting autoresuscitation mechanisms is a relatively new and less-tested approach.

Where this research is happening

Omaha, United States

Researchers

About this research

  1. This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
  2. Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
  3. For full project details, budget, and progress reports, visit the official NIH RePORTER page below.
Last reviewed 2026-06-13 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.