Why caregivers do or don't use respite care (Adult Day Services)
Study to Understand Participant Perspectives On Respite upTake (SUPPORT)
['FUNDING_R03'] · NORTHWESTERN UNIVERSITY · NIH-11111582
Researchers will learn what helps and what gets in the way of family caregivers using adult day services for people living with Alzheimer's and related dementias.
Quick facts
| Phase | ['FUNDING_R03'] |
|---|---|
| Study type | Nih_funding |
| Sex | All |
| Sponsor | NORTHWESTERN UNIVERSITY (nih funded) |
| Locations | 1 site (CHICAGO, UNITED STATES) |
| Trial ID | NIH-11111582 on ClinicalTrials.gov |
What this research studies
As a caregiver, you may be asked about your experiences, needs, and reasons for choosing or avoiding adult day services through interviews and short surveys. The team will recruit caregivers of adults with Alzheimer's or related dementias and may also speak with service providers to understand barriers like cost, access, and cultural concerns. They will analyze these conversations and survey responses to identify common themes and differences across race, income, and caregiver situation. Results will be used to suggest ways to increase use of affordable respite options.
Who could benefit from this research
Good fit: Ideal participants are adult family caregivers of people (age 21+) living with Alzheimer's disease or related dementias, especially those who have considered or used adult day services.
Not a fit: People who are not caregiving for someone with dementia, or whose loved one is already in full-time long-term care, are unlikely to benefit directly from participation.
Why it matters
Potential benefit: Could help more families access affordable adult day services, reducing caregiver stress and delaying nursing home placement for people with dementia.
How similar studies have performed: Previous national surveys show disparities in respite use and some benefits from adult day services, but few studies have directly explored caregiver decision-making, so this work fills an evidence gap.
Where this research is happening
CHICAGO, UNITED STATES
- NORTHWESTERN UNIVERSITY — CHICAGO, UNITED STATES (ACTIVE)
Researchers
- Principal investigator: O'CONOR, RACHEL — NORTHWESTERN UNIVERSITY
- Study coordinator: O'CONOR, RACHEL
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.
Conditions: Alzheimer disease dementia, Alzheimer syndrome, Alzheimer's Disease