Where and when dystonia starts in the developing brain

Spatial and temporal pathophysiology of developmental dystonia

NIH-funded research Baylor College of Medicine · NIH-11307130

This project explores how early brain changes lead to developmental dystonia to help children and others with early-onset dystonia.

Quick facts

Grant typeR01 grant
Study typeNIH-funded research
Funding institutionBaylor College of Medicine NIH-funded
Lab location1 site (Houston, United States)
Project IDNIH-11307130 on NIH RePORTER

What this research studies

Researchers use a genetic mouse model that turns off the En1 gene to recreate features of developmental dystonia and then map which brain regions and circuits change during embryonic and early postnatal life. They combine anatomical mapping, electrophysiology, and functional studies to follow spatial and temporal changes in the cerebellum and basal ganglia. Results will be compared to known adult circuit abnormalities and to outcomes from deep brain stimulation in adults. The aim is to pinpoint when and where pathological changes begin so future treatments can be timed and targeted more effectively.

Who could benefit from this research

Good fit: Children and adults with early-onset or developmental forms of dystonia could be eventual candidates for clinical trials or treatments informed by these findings.

Not a fit: People whose dystonia began in adulthood from medication side effects or other non-developmental causes may not directly benefit from this developmental-focused work.

Why it matters

Potential benefit: If successful, this work could reveal the timing and brain targets of developmental dystonia, guiding earlier or better-targeted therapies for children.

How similar studies have performed: Circuit-mapping and deep brain stimulation have helped adults with dystonia, but using En1-based mouse models to map embryonic and early postnatal origins is relatively novel.

Where this research is happening

Houston, United States

Researchers

About this research

  1. This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
  2. Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
  3. For full project details, budget, and progress reports, visit the official NIH RePORTER page below.
Last reviewed 2026-06-13 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.