Validating remote digital assessments for familial frontotemporal dementia
This study is testing a smartphone app that helps people with familial frontotemporal dementia (fFTD) check their thinking and movement skills from home, making it easier for more people to join in and track how the condition changes over time.
Quick facts
| Grant type | R01 grant |
|---|---|
| Study type | NIH-funded research |
| Funding institution | University of California, San Francisco NIH-funded |
| Lab location | 1 site (San Francisco, United States) |
| Project ID | NIH-11212188 on NIH RePORTER |
What this research studies
This research aims to improve the detection and monitoring of familial frontotemporal dementia (fFTD) using a smartphone application that allows for remote assessments of cognitive and motor functions. By recruiting participants from a wide geographic area, the study seeks to overcome barriers to in-person clinical trials, enabling more inclusive participation. The project will validate these digital assessments to ensure they are effective in tracking disease progression and response to potential treatments.
Who could benefit from this research
Good fit: Ideal candidates for this research include individuals with a family history of frontotemporal dementia or those who are genetically predisposed to the condition.
Not a fit: Patients without a familial link to frontotemporal dementia or those who do not exhibit early symptoms of the disease may not benefit from this research.
Why it matters
Potential benefit: If successful, this research could lead to more accurate and accessible methods for diagnosing and monitoring familial frontotemporal dementia, ultimately improving patient care.
How similar studies have performed: Other research has shown promise in using digital tools for monitoring neurodegenerative diseases, indicating that this approach could be effective.
Where this research is happening
San Francisco, United States
- University of California, San Francisco — San Francisco, United States (Active)
Researchers
- Principal investigator: Staffaroni, Adam Mark — University of California, San Francisco
- Study coordinator: Staffaroni, Adam Mark
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.