Using Your Health Data to Understand Childhood Cancer Recovery
Patient-Generated Health Data to Predict Childhood Cancer Survivorship Outcomes
This project collects health information directly from adult survivors of childhood cancer to better understand and predict their long-term health.
Quick facts
| Grant type | R01 grant |
|---|---|
| Study type | NIH-funded research |
| Funding institution | St. Jude Children's Research Hospital NIH-funded |
| Lab location | 1 site (Memphis, United States) |
| Project ID | NIH-11192249 on NIH RePORTER |
What this research studies
Childhood cancer survivors often face health challenges years after treatment. This project aims to gather personal health information, like symptoms, physical activity, sleep, and heart rate, directly from survivors using a mobile health platform. By regularly monitoring these details over three months, researchers hope to create models that can predict future quality of life and the risk of developing new health issues. This personalized approach could help doctors offer earlier support and interventions, ultimately improving survivorship care.
Who could benefit from this research
Good fit: Ideal candidates are adult survivors of childhood cancer who are at least 18 years old and at least five years past their diagnosis, participating in the St. Jude Lifetime Cohort Study.
Not a fit: Patients who are not adult survivors of childhood cancer or who are not part of the St. Jude Lifetime Cohort Study would not directly benefit from participation in this specific project.
Why it matters
Potential benefit: If successful, this work could lead to personalized risk predictions for childhood cancer survivors, allowing for earlier prevention and intervention strategies to improve their long-term health and quality of life.
How similar studies have performed: While regular symptom monitoring is uncommon in survivorship care, the use of patient-generated health data and mobile health platforms for health prediction is a growing area of research.
Where this research is happening
Memphis, United States
- St. Jude Children's Research Hospital — Memphis, United States (Active)
Researchers
- Principal investigator: Huang, I-Chan — St. Jude Children's Research Hospital
- Study coordinator: Huang, I-Chan
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.