Using Your Health Data to Understand Childhood Cancer Recovery
Official title: Patient-Generated Health Data to Predict Childhood Cancer Survivorship Outcomes
Funded at St. Jude Children's Research Hospital · NIH-11192249 · Data updated 2026-11-12
This project collects health information directly from adult survivors of childhood cancer to better understand and predict their long-term health.
Quick facts
| Grant type | R01 grant |
|---|---|
| Study type | NIH-funded research |
| Funding institution | St. Jude Children's Research Hospital NIH-funded |
| Lab location | 1 site (Memphis, United States) |
| Project start | July 5, 2021 |
| Project end | June 30, 2027 |
| Funding year | 2025 |
| Award (this year) | $1,131,433 |
| NIH project number | 5R01CA258193-04 |
| Project ID | NIH-11192249 on NIH RePORTER |
Who could benefit from this research
✓Could help
Ideal candidates are adult survivors of childhood cancer who are at least 18 years old and at least five years past their diagnosis, participating in the St. Jude Lifetime Cohort Study.
✕Less likely to help
Patients who are not adult survivors of childhood cancer or who are not part of the St. Jude Lifetime Cohort Study would not directly benefit from participation in this specific project.
What this research studies
Childhood cancer survivors often face health challenges years after treatment. This project aims to gather personal health information, like symptoms, physical activity, sleep, and heart rate, directly from survivors using a mobile health platform. By regularly monitoring these details over three months, researchers hope to create models that can predict future quality of life and the risk of developing new health issues. This personalized approach could help doctors offer earlier support and interventions, ultimately improving survivorship care.
Why it matters
Potential benefit: If successful, this work could lead to personalized risk predictions for childhood cancer survivors, allowing for earlier prevention and intervention strategies to improve their long-term health and quality of life.
How similar studies have gone: While regular symptom monitoring is uncommon in survivorship care, the use of patient-generated health data and mobile health platforms for health prediction is a growing area of research.
Where this research is happening
-
St. Jude Children's Research Hospital
Memphis, United States Active
Researchers
- Principal investigator: Huang, I-Chan — St. Jude Children's Research Hospital
- Study coordinator: Huang, I-Chan
Related research
Other NIH-funded projects on the same topics.
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Predicting Late Effects in Childhood Cancer Survivors Using Patient-Generated Health Data
This grant tests a mobile health approach to track symptoms, activity, sleep, and heart rate in adults who survived childhood cancer to predict future health problems and guide care.
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Childhood cancer survivorship resource
This project gathers long-term health data and blood samples from people who survived cancer as children to learn how treatment affects health later in life.
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Bridging cancer center and local doctor care to help childhood cancer survivors keep up with follow-up
A telehealth education program, tailored patient-portal messages, and coordinated outreach to primary care doctors to help childhood cancer survivors stay on track with recommended long-term follow-up care.
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Improving care for childhood cancer survivors through community partnerships
This study is all about helping kids who have survived cancer get the follow-up care they need by using telehealth to connect them with their doctors, making it easier for them to understand and manage their health after treatment.
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Using patient-generated health data to predict outcomes for childhood cancer survivors
This study is looking at childhood cancer survivors to understand their long-term health needs better, so we can create personalized plans to help them stay healthy and improve their quality of life.
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How distance affects care for childhood cancer survivors
This study looks at how far childhood cancer survivors, ages 0-20, have to travel to get specialized care and how that distance affects their health and access to medical help, especially for those who might be facing more challenges.
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.