Using virtual visits to engage participants with Parkinson disease
Research Project 2 will use remote assessments to engage large, novel populations of participants with Parkinson disease
['FUNDING_OTHER'] · UNIVERSITY OF ROCHESTER · NIH-10459491
This study is looking to make it easier for people with Parkinson's disease, especially those with LRRK2 mutations, to join research by using virtual visits, so you can participate from home without traveling, whether you're showing symptoms or not.
Quick facts
| Phase | ['FUNDING_OTHER'] |
|---|---|
| Study type | Nih_funding |
| Sex | All |
| Sponsor | UNIVERSITY OF ROCHESTER (nih funded) |
| Locations | 1 site (ROCHESTER, UNITED STATES) |
| Trial ID | NIH-10459491 on ClinicalTrials.gov |
What this research studies
This research aims to improve the recruitment of participants with Parkinson disease by utilizing virtual visits, allowing individuals to participate from anywhere without the need for extensive travel. The study will focus on individuals with LRRK2 mutations, both those who have not yet shown symptoms and those who have been diagnosed with the disease. By collaborating with a personal genomics company, the research will create a large, well-characterized cohort of participants over a 36-month period. This innovative approach seeks to make participation easier and more accessible for patients, ultimately enhancing the quality of data collected.
Who could benefit from this research
Good fit: Ideal candidates include individuals with LRRK2 mutations, both symptomatic and asymptomatic, who are interested in participating in virtual research.
Not a fit: Patients without LRRK2 mutations or those who do not have Parkinson disease may not benefit from this research.
Why it matters
Potential benefit: If successful, this research could lead to better understanding and treatment options for individuals with Parkinson disease.
How similar studies have performed: Other research has shown success with virtual participation models, indicating that this approach is promising and has the potential to be effective.
Where this research is happening
ROCHESTER, UNITED STATES
- UNIVERSITY OF ROCHESTER — ROCHESTER, UNITED STATES (ACTIVE)
Researchers
- Principal investigator: HOLLOWAY, ROBERT G. — UNIVERSITY OF ROCHESTER
- Study coordinator: HOLLOWAY, ROBERT G.
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.