Using real-world cancer data to improve personalized cancer care

Leveraging Observational (Real World) Data to Advance Precision Oncology

['FUNDING_P01'] · SLOAN-KETTERING INST CAN RESEARCH · NIH-11181536

Researchers will use a very large international collection of clinical and tumor-genetic records to make personalized cancer treatments work better for people with cancer.

Quick facts

Phase['FUNDING_P01']
Study typeNih_funding
SexAll
SponsorSLOAN-KETTERING INST CAN RESEARCH (nih funded)
Locations1 site (NEW YORK, UNITED STATES)
Trial IDNIH-11181536 on ClinicalTrials.gov

What this research studies

If you take part, researchers will combine and analyze a very large international database of clinical records and tumor genetic tests (AACR Project GENIE) that already includes over 148,000 patients. They will develop better statistical and bioinformatics methods to make sense of observational 'real-world' data and study how genetic ancestry affects mutation frequencies and treatment responses. The team will use these real-world findings to guide treatment choices for patients who aren't well served by conventional clinical trials and will improve how results are reported so clinicians can use them reliably. Work spans methodological development, analyses of patient tumor and clinical records, and multi-center collaboration to increase representation across ethnic groups.

Who could benefit from this research

Good fit: People with cancer who have had tumor genomic testing and are willing to allow use of their de-identified clinical and genetic records, especially patients from underrepresented ethnic groups, are most relevant.

Not a fit: Patients without available tumor genomic data, those who do not want their records shared, or those with tumor types not represented in the registry may not see direct benefits.

Why it matters

Potential benefit: If successful, this work could help doctors choose targeted therapies more accurately, reduce ancestry-related treatment disparities, and expand options for patients with rare tumor subtypes.

How similar studies have performed: Large clinico-genomic registries like AACR Project GENIE have already produced important insights, but applying real-world data to guide individual treatment decisions is still new and being refined.

Where this research is happening

NEW YORK, UNITED STATES

Researchers

About this research

  1. This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
  2. Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
  3. For full project details, budget, and progress reports, visit the official NIH RePORTER page below.

View on NIH RePORTER →

Conditions: American Association of Cancer Research, Cancer Center, Cancer Genes, Cancer Patient

Last reviewed 2026-05-15 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.