Using patient-generated health data to predict outcomes for childhood cancer survivors
Official title: Patient-Generated Health Data to Predict Childhood Cancer Survivorship Outcomes
Funded at St. Jude Children's Research Hospital · NIH-10878670 · Data updated 2026-11-12
This study is looking at childhood cancer survivors to understand their long-term health needs better, so we can create personalized plans to help them stay healthy and improve their quality of life.
Quick facts
| Grant type | R01 grant |
|---|---|
| Study type | NIH-funded research |
| Funding institution | St. Jude Children's Research Hospital NIH-funded |
| Lab location | 1 site (Memphis, United States) |
| Project start | July 5, 2021 |
| Project end | June 30, 2027 |
| Funding year | 2024 |
| Award (this year) | $298,816 |
| NIH project number | 5R01CA258193-03 |
| Project ID | NIH-10878670 on NIH RePORTER |
Who could benefit from this research
✓Could help
Ideal candidates for this research are adult survivors of childhood cancer who are at least five years post-diagnosis and currently over 18 years old.
✕Less likely to help
Patients who are not survivors of childhood cancer or those who are not yet 18 years old may not benefit from this research.
What this research studies
This research focuses on childhood cancer survivors who are at risk for long-term health issues due to their previous treatments. By collecting health data directly from patients, including symptoms and physical activity, the study aims to create personalized risk prediction models. These models will help healthcare providers better understand and manage the potential late effects of cancer treatment, ultimately improving the quality of life for survivors. The research will involve 620 adult survivors who are at least five years post-diagnosis and currently over 18 years old.
Why it matters
Potential benefit: If successful, this research could lead to improved monitoring and management of health risks for childhood cancer survivors, enhancing their long-term health outcomes.
How similar studies have gone: Other research has shown promise in using patient-generated health data for monitoring health outcomes, indicating that this approach could be effective.
Where this research is happening
-
St. Jude Children's Research Hospital
Memphis, United States Active
Researchers
- Principal investigator: Huang, I-Chan — St. Jude Children's Research Hospital
- Study coordinator: Huang, I-Chan
Related research
Other NIH-funded projects on the same topics.
-
Predicting Late Effects in Childhood Cancer Survivors Using Patient-Generated Health Data
This grant tests a mobile health approach to track symptoms, activity, sleep, and heart rate in adults who survived childhood cancer to predict future health problems and guide care.
-
Childhood cancer survivorship resource
This project gathers long-term health data and blood samples from people who survived cancer as children to learn how treatment affects health later in life.
-
Using Your Health Data to Understand Childhood Cancer Recovery
This project collects health information directly from adult survivors of childhood cancer to better understand and predict their long-term health.
-
Bridging cancer center and local doctor care to help childhood cancer survivors keep up with follow-up
A telehealth education program, tailored patient-portal messages, and coordinated outreach to primary care doctors to help childhood cancer survivors stay on track with recommended long-term follow-up care.
-
Improving care for childhood cancer survivors through community partnerships
This study is all about helping kids who have survived cancer get the follow-up care they need by using telehealth to connect them with their doctors, making it easier for them to understand and manage their health after treatment.
-
How distance affects care for childhood cancer survivors
This study looks at how far childhood cancer survivors, ages 0-20, have to travel to get specialized care and how that distance affects their health and access to medical help, especially for those who might be facing more challenges.
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.