Using long-term community data to improve dementia care and support
Deploying High Value Longitudinal Population-Based data in Dementia Research (DEVELOP AD Research)
This project uses large health and community datasets to learn how social, care, and place-based factors affect people living with dementia and their caregivers.
Quick facts
| Grant type | P01 program project |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Icahn School of Medicine at Mount Sinai NIH-funded |
| Lab location | 1 site (New York, United States) |
| Project ID | NIH-11265776 on NIH RePORTER |
What this research studies
From my point of view, the team combines years of population-level health, social, and service data to track how care and outcomes change over time for people with dementia. They look at things like loneliness and isolation, who provides home health or hospice services, and whether someone lives in an urban or rural area. By linking different datasets over many years, they try to spot patterns that explain why some people get better supports and others do not. The goal is to translate those patterns into recommendations that improve care, supports, and policies for people living with dementia and their care partners.
Who could benefit from this research
Good fit: Ideal candidates for involvement are people living with Alzheimer’s disease or related dementias and their family or unpaid caregivers whose care and outcomes appear in large health or community datasets.
Not a fit: People without ADRD or those whose health or social information is not captured in the datasets (for example, people outside the covered regions or with no linked records) are unlikely to directly benefit from participation.
Why it matters
Potential benefit: If successful, this work could guide better home- and community-based services, policies, and supports that reduce burden and improve quality of life for people with dementia and their caregivers.
How similar studies have performed: Other large population and longitudinal data projects have successfully identified care gaps and influenced policy, and this program builds on that prior work to address new questions about social and service contexts.
Where this research is happening
New York, United States
- Icahn School of Medicine at Mount Sinai — New York, United States (Active)
Researchers
- Principal investigator: Morrison, R. Sean — Icahn School of Medicine at Mount Sinai
- Study coordinator: Morrison, R. Sean
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.