Using data science to improve health outcomes for children with HIV
Official title: DSpace: Utilizing Data Science to Predict and Improve Health Outcomes in Pediatric HIV
Funded at University of Botswana · NIH-11062561 · Data updated 2026-11-12
This study is looking to improve children's health in Uganda and Botswana by using electronic health records and genetic information, while also making sure that everyone's privacy and consent are respected, and it’s gathering opinions from people involved to help shape better policies for the future.
Quick facts
| Grant type | U01 cooperative agreement |
|---|---|
| Study type | NIH-funded research |
| Funding institution | University of Botswana NIH-funded |
| Lab location | 1 site (Gaborone, Botswana) |
| Project start | September 18, 2023 |
| Project end | August 31, 2026 |
| Funding year | 2024 |
| Award (this year) | $108,023 |
| NIH project number | 3U01HD114479-02S1 |
| Project ID | NIH-11062561 on NIH RePORTER |
Who could benefit from this research
✓Could help
Ideal candidates for this research are children under 11 years old living with HIV in Uganda and Botswana.
✕Less likely to help
Patients who are not involved in pediatric HIV care or those outside the age range of 0-11 years may not benefit from this research.
What this research studies
This research focuses on enhancing pediatric health outcomes in Uganda and Botswana by utilizing electronic health records (EHR) and genomic data. It aims to address ethical and legal issues surrounding the use of sensitive health information in pediatric research. Through interviews and surveys, the project will gather insights from stakeholders about consent and privacy concerns related to EHR data. The ultimate goal is to create a framework that informs future policies on data use in pediatric healthcare.
Why it matters
Potential benefit: If successful, this research could lead to improved health policies and practices that enhance the care and outcomes for children living with HIV.
How similar studies have gone: Previous research has shown promise in utilizing data science for health outcomes, but this specific approach to pediatric EHR and genomic data linkage is relatively novel.
Where this research is happening
-
University of Botswana
Gaborone, Botswana Active
Researchers
- Principal investigator: Retshabile, Gaone — University of Botswana
- Study coordinator: Retshabile, Gaone
Related research
Other NIH-funded projects on the same topics.
-
Integrating heart care into HIV services in Botswana using statins
This project tests a simple, scalable approach to help people with HIV in Botswana start and stay on statin therapy to prevent heart attacks and strokes.
-
Integrating heart-attack and stroke prevention with HIV care in Botswana
A study tests a simple, scalable plan to help people with HIV in Botswana get statins to prevent heart problems.
-
Data tools to find health risks in children and teens living with HIV
This project uses computer-based data tools to spot risks like metabolic problems and hidden tuberculosis in children and adolescents with HIV in Botswana and similar settings.
-
PrEP delivery strategies to boost HIV prevention in Botswana
A large study in Botswana tests community-based ways to get more people to start and keep using PrEP to prevent HIV.
-
Data tools to spot health risks and guide care for children with HIV
This project uses data and AI to spot which children and teens with HIV are more likely to develop metabolic problems or tuberculosis so care can be improved.
-
Improving HIV prevention strategies in Botswana
This study is all about finding better ways to help people in Botswana learn about and access PrEP, a medication that can prevent HIV, especially focusing on younger folks who are often on the move and use technology a lot.
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.