Using data science to improve health outcomes for children with HIV
DSpace: Utilizing Data Science to Predict and Improve Health Outcomes in Pediatric HIV
This study is looking to improve children's health in Uganda and Botswana by using electronic health records and genetic information, while also making sure that everyone's privacy and consent are respected, and it’s gathering opinions from people involved to help shape better policies for the future.
Quick facts
| Grant type | U01 cooperative agreement |
|---|---|
| Study type | NIH-funded research |
| Funding institution | University of Botswana NIH-funded |
| Lab location | 1 site (Gaborone, Botswana) |
| Project ID | NIH-11062561 on NIH RePORTER |
What this research studies
This research focuses on enhancing pediatric health outcomes in Uganda and Botswana by utilizing electronic health records (EHR) and genomic data. It aims to address ethical and legal issues surrounding the use of sensitive health information in pediatric research. Through interviews and surveys, the project will gather insights from stakeholders about consent and privacy concerns related to EHR data. The ultimate goal is to create a framework that informs future policies on data use in pediatric healthcare.
Who could benefit from this research
Good fit: Ideal candidates for this research are children under 11 years old living with HIV in Uganda and Botswana.
Not a fit: Patients who are not involved in pediatric HIV care or those outside the age range of 0-11 years may not benefit from this research.
Why it matters
Potential benefit: If successful, this research could lead to improved health policies and practices that enhance the care and outcomes for children living with HIV.
How similar studies have performed: Previous research has shown promise in utilizing data science for health outcomes, but this specific approach to pediatric EHR and genomic data linkage is relatively novel.
Where this research is happening
Gaborone, Botswana
- University of Botswana — Gaborone, Botswana (Active)
Researchers
- Principal investigator: Retshabile, Gaone — University of Botswana
- Study coordinator: Retshabile, Gaone
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.