Updating clinical data for childhood cancer cases
Official title: GDC Clinical Data Update
Funded at Leidos Biomedical Research, INC. · NIH-11219771 · Data updated 2026-11-12
This study is gathering and updating health information from 14,000 kids who have had cancer to help researchers better understand childhood cancers and improve treatments, so families can feel hopeful about contributing to important discoveries.
Quick facts
| Grant type | NIH-funded research |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Leidos Biomedical Research, INC. NIH-funded |
| Lab location | 1 site (Frederick, United States) |
| Project start | September 28, 2024 |
| Project end | August 30, 2025 |
| Funding year | 2024 |
| Award (this year) | $18,486,552 |
| NIH project number | 75N91019D00024-0-759102400011-15 |
| Project ID | NIH-11219771 on NIH RePORTER |
Who could benefit from this research
✓Could help
Ideal candidates for this research include children diagnosed with malignant childhood tumors who are part of the datasets being updated.
✕Less likely to help
Patients with non-malignant conditions or those not included in the targeted datasets may not receive any benefit from this research.
What this research studies
This project focuses on collecting and updating follow-up clinical data for 14,000 childhood cancer cases within the Genomic Data Commons. By utilizing a unified data repository, it aims to enhance data sharing across various cancer genomic studies, which is crucial for advancing precision medicine. Patients and their families can expect that their clinical information will contribute to a larger understanding of childhood cancers, potentially leading to improved treatment strategies. The methodology involves systematic data collection and integration from multiple sources to ensure comprehensive and accurate datasets.
Why it matters
Potential benefit: If successful, this research could lead to more personalized and effective treatment options for children with cancer.
How similar studies have gone: Previous research utilizing similar data-sharing approaches in cancer genomics has shown promising results in enhancing treatment outcomes.
Where this research is happening
-
Leidos Biomedical Research, INC.
Frederick, United States Active
Researchers
- Principal investigator: Briscoe, Lynn — Leidos Biomedical Research, INC.
- Study coordinator: Briscoe, Lynn
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.