Understanding why cancer patients don't report their outcomes

Nonresponse of Patient-reported Outcomes in Routine Cancer Care

['FUNDING_R03'] · BRIGHAM AND WOMEN'S HOSPITAL · NIH-10953291

This study is looking into why some cancer patients don’t fill out surveys about their health experiences, so we can find better ways to make sure everyone's voice is heard and their needs are met in their care.

Quick facts

Phase['FUNDING_R03']
Study typeNih_funding
SexAll
SponsorBRIGHAM AND WOMEN'S HOSPITAL (nih funded)
Locations1 site (BOSTON, UNITED STATES)
Trial IDNIH-10953291 on ClinicalTrials.gov

What this research studies

This research investigates the reasons why cancer patients may not respond to patient-reported outcome measures (PROMs), which are essential for improving communication between patients and clinicians. By identifying the underlying causes of nonresponse, the study aims to develop new strategies to enhance the representativeness of the data collected in routine cancer care. This will help ensure that the experiences and needs of all patients, especially those from underrepresented groups, are accurately captured and addressed in their treatment plans.

Who could benefit from this research

Good fit: Ideal candidates for this research include cancer patients who have been asked to provide feedback on their treatment experiences but have not responded.

Not a fit: Patients who are not currently undergoing cancer treatment or those who have not been asked to provide patient-reported outcomes may not benefit from this research.

Why it matters

Potential benefit: If successful, this research could lead to more equitable and effective cancer care by ensuring that patient feedback is accurately represented and utilized.

How similar studies have performed: Previous research has shown that improving the collection of patient-reported outcomes can enhance care quality, indicating that addressing nonresponse may also yield positive results.

Where this research is happening

BOSTON, UNITED STATES

Researchers

About this research

  1. This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
  2. Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
  3. For full project details, budget, and progress reports, visit the official NIH RePORTER page below.

View on NIH RePORTER →

Conditions: Cancer Patient, Cancers

Last reviewed 2026-05-15 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.