Understanding the varied effects of neurofibromatosis type 1 to improve treatment and risk assessment

Modeling neurofibromatosis-1 disease heterogeneity to optimize risk assessment and treatment

NIH-funded research Washington University · NIH-11134859

This study is looking at neurofibromatosis type 1 (NF1) to understand how different genes and other factors affect the symptoms people experience, so we can create better, personalized treatments just for you.

Quick facts

Grant typeNIH-funded research
Study typeNIH-funded research
Funding institutionWashington University NIH-funded
Lab location1 site (Saint Louis, United States)
Project IDNIH-11134859 on NIH RePORTER

What this research studies

This research focuses on neurofibromatosis type 1 (NF1), a genetic condition that leads to a wide range of neurological issues and tumors. The project aims to identify the genetic and molecular factors that contribute to the diverse symptoms experienced by patients with NF1. By analyzing how these factors interact with both internal and external influences, the research seeks to develop personalized treatment strategies that are more effective for each individual. Patients may benefit from improved risk assessments and tailored therapies based on their unique disease characteristics.

Who could benefit from this research

Good fit: Ideal candidates for this research include individuals diagnosed with neurofibromatosis type 1, particularly children and young adults experiencing neurological problems or tumors.

Not a fit: Patients with other unrelated genetic conditions or those who do not have neurofibromatosis type 1 may not benefit from this research.

Why it matters

Potential benefit: If successful, this research could lead to more effective and personalized treatment options for patients with neurofibromatosis type 1.

How similar studies have performed: Previous research has shown promise in understanding genetic conditions through personalized approaches, suggesting potential for success in this area as well.

Where this research is happening

Saint Louis, United States

Researchers

About this research

  1. This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
  2. Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
  3. For full project details, budget, and progress reports, visit the official NIH RePORTER page below.
Last reviewed 2026-06-10 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.