Understanding the TDP-43 protein in frontotemporal dementia and ALS

Administrative Core

NIH-funded research Stanford University · NIH-11172539

This center aims to understand how a protein called TDP-43 causes frontotemporal dementia and related ALS so researchers can find earlier markers and new treatment targets for people affected by these diseases.

Quick facts

Grant typeNIH-funded research
Study typeNIH-funded research
Funding institutionStanford University NIH-funded
Lab location1 site (Stanford, United States)
Project IDNIH-11172539 on NIH RePORTER

What this research studies

This project brings together experts in genetics, genomics, neurology, and pathology to study FTLD-TDP (frontotemporal lobar degeneration with TDP-43). The team will analyze human brain tissue and high-resolution images to map where TDP-43 is located in different brain regions and how it affects RNA splicing. They will integrate genetic and molecular data to find early signs of TDP-43 dysfunction and potential molecular targets. All data and code will be shared through a public web portal to help other researchers and clinicians build on the findings.

Who could benefit from this research

Good fit: Ideal participants are people with frontotemporal dementia or ALS (or their families) who are willing to share clinical or genetic information or donate tissue samples for research.

Not a fit: Patients seeking an immediate treatment benefit or those without TDP-43–related disease should not expect direct, short-term personal benefit from this center's work.

Why it matters

Potential benefit: If successful, the work could reveal early biological markers of disease and point to new targets for therapies for frontotemporal dementia and related ALS.

How similar studies have performed: Previous research has linked TDP-43 to ALS and FTD and shown mis-splicing, but this integrated, large-scale human-brain imaging and genetics approach is relatively new.

Where this research is happening

Stanford, United States

Researchers

About this research

  1. This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
  2. Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
  3. For full project details, budget, and progress reports, visit the official NIH RePORTER page below.
Last reviewed 2026-06-13 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.