Understanding the impact of rare diseases on patients and healthcare systems.
Official title: EVERSANA LIFE SCIENCE SERVICES LLC:1466808 [24-007681]
Funded at Eversana Life Science Services LLC · NIH-11220348 · Data updated 2026-11-12
This study is looking at how rare diseases affect patients and the healthcare services they use, and it wants to hear from patients about their experiences to help make healthcare better for everyone dealing with these unique conditions.
Quick facts
| Grant type | NIH-funded research |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Eversana Life Science Services LLC NIH-funded |
| Lab location | 1 site (Milwaukee, United States) |
| Project start | September 30, 2024 |
| Project end | September 29, 2025 |
| Funding year | 2024 |
| Award (this year) | $874,750 |
| NIH project number | 75N95024C00041-0-9999-1 |
| Project ID | NIH-11220348 on NIH RePORTER |
Who could benefit from this research
✓Could help
Ideal candidates for this research are individuals diagnosed with rare diseases or disorders.
✕Less likely to help
Patients with common diseases or those not classified as rare may not receive direct benefits from this research.
What this research studies
This research focuses on the effects that rare diseases have on patients and the healthcare systems that support them. It aims to gather data and insights through support services that will help identify the challenges faced by individuals with rare conditions. By analyzing these impacts, the research seeks to improve healthcare delivery and patient outcomes for those affected by orphan diseases. Patients may be involved in providing information about their experiences, which will contribute to a broader understanding of these conditions.
Why it matters
Potential benefit: If successful, this research could lead to improved healthcare strategies and support systems for patients with rare diseases.
How similar studies have gone: Previous research has shown success in understanding the impact of rare diseases, indicating that this approach is promising.
Where this research is happening
-
Eversana Life Science Services LLC
Milwaukee, United States Active
Researchers
- Principal investigator: Nathan, Ramaa — Eversana Life Science Services LLC
- Study coordinator: Nathan, Ramaa
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.