Understanding the impact of rare diseases on patients and healthcare systems.
EVERSANA LIFE SCIENCE SERVICES LLC:1466808 [24-007681]
This study is looking at how rare diseases affect patients and the healthcare services they use, and it wants to hear from patients about their experiences to help make healthcare better for everyone dealing with these unique conditions.
Quick facts
| Grant type | NIH-funded research |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Eversana Life Science Services LLC NIH-funded |
| Lab location | 1 site (Milwaukee, United States) |
| Project ID | NIH-11220348 on NIH RePORTER |
What this research studies
This research focuses on the effects that rare diseases have on patients and the healthcare systems that support them. It aims to gather data and insights through support services that will help identify the challenges faced by individuals with rare conditions. By analyzing these impacts, the research seeks to improve healthcare delivery and patient outcomes for those affected by orphan diseases. Patients may be involved in providing information about their experiences, which will contribute to a broader understanding of these conditions.
Who could benefit from this research
Good fit: Ideal candidates for this research are individuals diagnosed with rare diseases or disorders.
Not a fit: Patients with common diseases or those not classified as rare may not receive direct benefits from this research.
Why it matters
Potential benefit: If successful, this research could lead to improved healthcare strategies and support systems for patients with rare diseases.
How similar studies have performed: Previous research has shown success in understanding the impact of rare diseases, indicating that this approach is promising.
Where this research is happening
Milwaukee, United States
- Eversana Life Science Services LLC — Milwaukee, United States (Active)
Researchers
- Principal investigator: Nathan, Ramaa — Eversana Life Science Services LLC
- Study coordinator: Nathan, Ramaa
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.