Understanding the impact of multiple chronic illnesses from patient perspectives
Official title: Measuring Lifelong Multimorbidity with Patient Perspectives: Implementing and Visualizing the Cumulative Burden Methodology Across Cohorts
Funded at St. Jude Children's Research Hospital · NIH-11146435 · Data updated 2026-11-12
This study is looking for better ways to understand how living with multiple chronic illnesses affects both your body and mind, using insights from patients to create personalized tools that reflect your unique experiences, starting with pediatric cancer survivors and expanding to others like those with sickle cell disease.
Quick facts
| Grant type | R01 grant |
|---|---|
| Study type | NIH-funded research |
| Funding institution | St. Jude Children's Research Hospital NIH-funded |
| Lab location | 1 site (Memphis, United States) |
| Project start | March 11, 2022 |
| Project end | February 28, 2026 |
| Funding year | 2025 |
| Award (this year) | $502,584 |
| NIH project number | 5R01CA270157-04 |
| Project ID | NIH-11146435 on NIH RePORTER |
Who could benefit from this research
✓Could help
Ideal candidates for this research include individuals with multiple chronic conditions, particularly pediatric cancer survivors and patients with sickle cell disease.
✕Less likely to help
Patients with single chronic conditions or those without any chronic illnesses may not receive direct benefits from this research.
What this research studies
This research aims to develop new ways to measure and visualize the cumulative burden of multiple chronic illnesses, focusing on both physical and mental health conditions. By incorporating patient perspectives, the study will create personalized measures that reflect the unique experiences of individuals over their lifetime. The research will utilize data from pediatric cancer survivors and apply these measures to other patient cohorts, including those with sickle cell disease, to enhance clinical decision-making and intervention strategies.
Why it matters
Potential benefit: If successful, this research could lead to improved understanding and management of multimorbidity, ultimately enhancing patient care and outcomes.
How similar studies have gone: Previous research has shown success in developing multimorbidity measures, but this approach is novel in its focus on patient perspectives and personalized burden assessments.
Where this research is happening
-
St. Jude Children's Research Hospital
Memphis, United States Active
Researchers
- Principal investigator: Bhakta, Nickhill Hitesh — St. Jude Children's Research Hospital
- Study coordinator: Bhakta, Nickhill Hitesh
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About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.