Understanding the Genetics of Facioscapulohumeral Muscular Dystrophy (FSHD)

Genetic and epigenetic mechanisms of FSHD pathogenesis

NIH-funded research University of California-Irvine · NIH-11097323

This research aims to better understand the genetic and cellular changes that cause Facioscapulohumeral Muscular Dystrophy (FSHD), a common muscle weakening condition.

Quick facts

Grant typeR01 grant
Study typeNIH-funded research
Funding institutionUniversity of California-Irvine NIH-funded
Lab location1 site (Irvine, United States)
Project IDNIH-11097323 on NIH RePORTER

What this research studies

Facioscapulohumeral Muscular Dystrophy (FSHD) is a muscle disease that currently has no effective treatments, and we don't fully understand how it develops. Most cases of FSHD are linked to a specific genetic change on chromosome 4, while a smaller number of cases involve other genetic mutations. We know that a gene called DUX4 plays a critical role in FSHD, but its exact function is complex and not fully clear. This project explores how DUX4 and other related genes contribute to muscle damage in FSHD, looking beyond just DUX4's direct effects on cells.

Who could benefit from this research

Good fit: This foundational research is relevant to all individuals living with Facioscapulohumeral Muscular Dystrophy (FSHD), regardless of their specific genetic subtype.

Not a fit: Individuals without Facioscapulohumeral Muscular Dystrophy (FSHD) would not directly benefit from this specific research.

Why it matters

Potential benefit: If successful, this work could uncover new ways to target the underlying causes of FSHD, leading to the development of much-needed treatments.

How similar studies have performed: This project builds upon previous findings by the research team, suggesting a progressive understanding of FSHD mechanisms.

Where this research is happening

Irvine, United States

Researchers

About this research

  1. This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
  2. Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
  3. For full project details, budget, and progress reports, visit the official NIH RePORTER page below.
Last reviewed 2026-06-13 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.