Understanding the genetic causes of FSGS and steroid-resistant nephrotic syndrome

Integrating large scale genomics and functional studies to accelerate FSGS/NS discovery

NIH-funded research Beth Israel Deaconess Medical Center · NIH-10891546

This study is looking at the genes of about 10,000 people with focal and segmental glomerulosclerosis (FSGS) and steroid-resistant nephrotic syndrome (SRNS) to find out how these genes affect their treatment and health, with the hope of improving diagnosis and creating better treatment options for patients like you.

Quick facts

Grant typeNIH-funded research
Study typeNIH-funded research
Funding institutionBeth Israel Deaconess Medical Center NIH-funded
Lab location1 site (Boston, United States)
Project IDNIH-10891546 on NIH RePORTER

What this research studies

This research focuses on a large cohort of approximately 10,000 patients with focal and segmental glomerulosclerosis (FSGS) and steroid-resistant nephrotic syndrome (SRNS) to explore the genetic underpinnings of these conditions. By utilizing genome-wide sequencing data, the researchers aim to identify specific genetic mutations that contribute to these diseases. The study will also investigate how these genetic factors influence treatment responses and outcomes, particularly in relation to steroid therapies and renal transplant planning. The goal is to enhance diagnostic accuracy and develop targeted therapeutic strategies based on genetic findings.

Who could benefit from this research

Good fit: Ideal candidates for this research are individuals diagnosed with focal and segmental glomerulosclerosis or steroid-resistant nephrotic syndrome.

Not a fit: Patients with other types of kidney diseases unrelated to FSGS or SRNS may not benefit from this research.

Why it matters

Potential benefit: If successful, this research could lead to more accurate diagnoses and personalized treatment options for patients with FSGS and SRNS.

How similar studies have performed: Previous research has shown success in identifying genetic factors in similar kidney diseases, indicating a promising approach for this study.

Where this research is happening

Boston, United States

Researchers

About this research

  1. This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
  2. Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
  3. For full project details, budget, and progress reports, visit the official NIH RePORTER page below.
Last reviewed 2026-06-10 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.