Understanding the experiences of children with complex medical needs during the COVID-19 pandemic.
Official title: The Patient Journey for Children with Medical Complexity during Pandemic Era andits implications.
Funded at The Trustees of the Stevens Institute of Technology · NIH-10515047 · Data updated 2026-11-12
This study is looking at how the COVID-19 pandemic has changed the way children with complex medical needs receive care, and it wants to hear from families, doctors, and the kids themselves to find ways to make their healthcare better.
Quick facts
| Grant type | R15 grant |
|---|---|
| Study type | NIH-funded research |
| Funding institution | The Trustees of the Stevens Institute of Technology NIH-funded |
| Lab location | 1 site (Hoboken, United States) |
| Project start | September 14, 2022 |
| Project end | August 31, 2025 |
| Funding year | 2022 |
| Award (this year) | $456,750 |
| NIH project number | 1R15HD109791-01 |
| Project ID | NIH-10515047 on NIH RePORTER |
Who could benefit from this research
✓Could help
Ideal candidates for this research are children aged 0-21 with complex medical needs who have experienced care during the COVID-19 pandemic.
✕Less likely to help
Patients without complex medical needs or those who did not receive care during the pandemic may not benefit from this research.
What this research studies
This research investigates how the COVID-19 pandemic has affected the care journey of children with medical complexity (CMC). It aims to gather insights from various stakeholders involved in CMC care, including healthcare providers, caregivers, and the patients themselves. By employing qualitative and quantitative methods, the study will analyze the challenges faced during the pandemic and identify areas for improvement in care delivery. The findings will inform strategies to enhance the healthcare experience for these vulnerable children and their families.
Why it matters
Potential benefit: If successful, this research could lead to improved healthcare strategies and support systems for children with complex medical needs.
How similar studies have gone: While there is ongoing research into the impact of COVID-19 on healthcare delivery, this specific focus on children with medical complexity is relatively novel.
Where this research is happening
-
The Trustees of the Stevens Institute of Technology
Hoboken, United States Active
Researchers
- Principal investigator: Asan, Onur — The Trustees of the Stevens Institute of Technology
- Study coordinator: Asan, Onur
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.