Understanding the development of youth with congenital heart defects
Developmental Progression of Youth with Critical Congenital Heart Defects
['FUNDING_R01'] · RESEARCH INST NATIONWIDE CHILDREN'S HOSP · NIH-10611955
This study is looking at how kids and teens who have survived heart defects grow up socially, emotionally, and academically, especially as they move from elementary to middle school, to help find ways to support them better in their lives.
Quick facts
| Phase | ['FUNDING_R01'] |
|---|---|
| Study type | Nih_funding |
| Sex | All |
| Sponsor | RESEARCH INST NATIONWIDE CHILDREN'S HOSP (nih funded) |
| Locations | 1 site (COLUMBUS, UNITED STATES) |
| Trial ID | NIH-10611955 on ClinicalTrials.gov |
What this research studies
This research investigates the psychosocial development of children and adolescents who have survived congenital heart defects (CHD). It aims to identify the social, academic, and emotional challenges these individuals face as they grow, particularly during the transition from elementary to middle school. By employing a longitudinal approach, the study will gather data from multiple sources, including self-reports, peer assessments, and teacher evaluations, to gain a comprehensive understanding of their experiences. The ultimate goal is to inform interventions that can enhance the quality of life for these survivors throughout their lives.
Who could benefit from this research
Good fit: Ideal candidates for this research are children and adolescents aged 0-20 who have been diagnosed with congenital heart defects.
Not a fit: Patients without congenital heart defects or those who are outside the age range of 0-20 may not benefit from this research.
Why it matters
Potential benefit: If successful, this research could lead to improved psychosocial support and interventions for youth with congenital heart defects, enhancing their overall quality of life.
How similar studies have performed: Previous research has shown success in understanding neurodevelopmental outcomes in young children with CHD, but this longitudinal approach focusing on psychosocial development during adolescence is relatively novel.
Where this research is happening
COLUMBUS, UNITED STATES
- RESEARCH INST NATIONWIDE CHILDREN'S HOSP — COLUMBUS, UNITED STATES (ACTIVE)
Researchers
- Principal investigator: VANNATTA, KATHRYN — RESEARCH INST NATIONWIDE CHILDREN'S HOSP
- Study coordinator: VANNATTA, KATHRYN
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.