Understanding the causes of craniofacial disorders related to splicing mutations

Deciphering the underlying mechanisms of craniofacial spliceosomopathies

NIH-funded research New York University · NIH-11033473

This study is looking into Nager syndrome, a rare condition that affects the face and limbs, to understand how changes in a specific gene cause its unique features, which could eventually help find new treatments for people with this syndrome.

Quick facts

Grant typeCareer grant
Study typeNIH-funded research
Funding institutionNew York University NIH-funded
Lab location1 site (New York, United States)
Project IDNIH-11033473 on NIH RePORTER

What this research studies

This research investigates Nager syndrome, a rare craniofacial and limb disorder caused by mutations in the SF3B4 gene. By using a combination of animal models and patient-derived stem cells, the study aims to uncover the specific mechanisms that lead to the unique features of this condition. The research will explore how these genetic mutations affect the development of craniofacial structures, providing insights into the pathology of Nager syndrome and related disorders. This approach may help identify potential therapeutic targets for affected individuals.

Who could benefit from this research

Good fit: Ideal candidates for this research include individuals diagnosed with Nager syndrome or other related craniofacial spliceosomopathies.

Not a fit: Patients with craniofacial disorders not linked to spliceosome mutations may not benefit from this research.

Why it matters

Potential benefit: If successful, this research could lead to better understanding and potential treatments for patients with Nager syndrome and similar craniofacial disorders.

How similar studies have performed: While the specific mechanisms of Nager syndrome are not fully understood, similar research approaches have shown promise in elucidating the causes of other genetic disorders.

Where this research is happening

New York, United States

Researchers

About this research

  1. This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
  2. Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
  3. For full project details, budget, and progress reports, visit the official NIH RePORTER page below.
Conditions Berry syndromeBerry-Treacher Collins syndrome
Last reviewed 2026-06-10 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.