Understanding the causes of a genetic form of frontotemporal dementia

Defining mechanisms underlying C9orf72-associated frontotemporal dementia with C. elegans and mammalian models

NIH-funded research Northwestern University at Chicago · NIH-11012812

This study is looking into how changes in the C9orf72 gene cause frontotemporal dementia, with the goal of finding ways to reduce the harmful effects of this gene and help develop new treatments for people affected by the condition.

Quick facts

Grant typeR01 grant
Study typeNIH-funded research
Funding institutionNorthwestern University at Chicago NIH-funded
Lab location1 site (Chicago, United States)
Project IDNIH-11012812 on NIH RePORTER

What this research studies

This research investigates the genetic mechanisms behind frontotemporal dementia (FTD), particularly focusing on the C9orf72 gene, which is linked to about 25% of FTD cases. Using models like C. elegans and mammalian systems, the study aims to uncover how specific genetic expansions lead to neurodegeneration. The researchers are exploring the toxic effects of dipeptide repeat proteins produced by the gene and identifying genetic pathways that could mitigate this toxicity. By understanding these mechanisms, the research hopes to pave the way for potential therapeutic strategies.

Who could benefit from this research

Good fit: Ideal candidates for this research are individuals with a genetic predisposition to frontotemporal dementia, particularly those with C9orf72 gene expansions.

Not a fit: Patients with frontotemporal dementia not linked to the C9orf72 gene may not benefit from this research.

Why it matters

Potential benefit: If successful, this research could lead to new treatments for patients suffering from frontotemporal dementia.

How similar studies have performed: Previous research has shown promising results in understanding genetic mechanisms of neurodegenerative diseases, suggesting potential for success in this area as well.

Where this research is happening

Chicago, United States

Researchers

About this research

  1. This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
  2. Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
  3. For full project details, budget, and progress reports, visit the official NIH RePORTER page below.
Conditions Alzheimer disease dementiaAlzheimer syndromeAlzheimer's Disease
Last reviewed 2026-06-13 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.