Understanding symptoms in adult survivors of childhood cancer
Patient-Reported Outcomes Version of CTCAE involving Childhood Cancer Survivors
This study is working to create a special tool that helps adult survivors of childhood cancer share their unique health challenges, so we can better understand their needs and improve their care and quality of life.
Quick facts
| Grant type | R01 grant |
|---|---|
| Study type | NIH-funded research |
| Funding institution | St. Jude Children's Research Hospital NIH-funded |
| Lab location | 1 site (Memphis, United States) |
| Project ID | NIH-10674530 on NIH RePORTER |
What this research studies
This research focuses on adult survivors of childhood cancer and aims to adapt a symptom assessment tool called the Patient-Reported Outcomes version of the Common Terminology Criteria for Adverse Events (PRO-CTCAE) specifically for this population. By identifying unique symptoms that these survivors experience, the study seeks to improve the understanding of their health challenges and enhance survivorship care. The research involves collaboration with established cohorts of childhood cancer survivors to ensure that the tool accurately reflects their experiences. Ultimately, the goal is to design interventions that can improve health outcomes and quality of life for these individuals.
Who could benefit from this research
Good fit: Ideal candidates for this research are adults who are survivors of childhood cancer and are experiencing late effects from their treatment.
Not a fit: Patients who have not survived childhood cancer or those who are currently undergoing treatment for cancer may not benefit from this research.
Why it matters
Potential benefit: If successful, this research could lead to better symptom management and improved quality of life for adult survivors of childhood cancer.
How similar studies have performed: Previous research has shown success in adapting symptom assessment tools for different cancer populations, indicating that this approach has potential.
Where this research is happening
Memphis, United States
- St. Jude Children's Research Hospital — Memphis, United States (Active)
Researchers
- Principal investigator: Huang, I-Chan — St. Jude Children's Research Hospital
- Study coordinator: Huang, I-Chan
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.