Understanding social needs and care for young adult cancer survivors and their families
Official title: Assessment of social needs and survivorship care experiences among adolescent and young adult (AYA) cancer survivors, families, and the healthcare team
Funded at University of California, San Diego · NIH-11088148 · Data updated 2026-11-12
This project explores the social needs and care experiences of young adult cancer survivors and their families to help them stay connected to important follow-up care.
Quick facts
| Grant type | NIH-funded research |
|---|---|
| Study type | NIH-funded research |
| Funding institution | University of California, San Diego NIH-funded |
| Lab location | 1 site (La Jolla, United States) |
| Project start | September 21, 2021 |
| Project end | May 31, 2027 |
| Funding year | 2025 |
| Award (this year) | $108,744 |
| NIH project number | 5K00CA264294-05 |
| Project ID | NIH-11088148 on NIH RePORTER |
Who could benefit from this research
✓Could help
Ideal candidates for this type of work include adolescent and young adult cancer survivors and their families, particularly those from Hispanic/Latino backgrounds.
✕Less likely to help
Patients who are not adolescent or young adult cancer survivors, or those not dealing with long-term survivorship care challenges, may not directly benefit from this specific research.
What this research studies
Many childhood cancer survivors experience long-term health issues, known as "late effects," after their treatment. While follow-up care is crucial, many young adults stop engaging with it over time. This work looks at how parents support their children through treatment and into adult survivorship, especially considering cultural factors that might affect Hispanic/Latino families. By understanding the connections between survivors, their parents, and healthcare providers, we hope to find better ways to support young adults in managing their long-term health.
Why it matters
Potential benefit: If successful, this work could lead to improved strategies for helping young adult cancer survivors and their families stay engaged with necessary long-term care, potentially reducing adverse health outcomes.
How similar studies have gone: Previous studies have shown that psychological distress and cultural factors can impact the health and care engagement of childhood cancer survivors, suggesting this approach builds on existing evidence.
Where this research is happening
-
University of California, San Diego
La Jolla, United States Active
Researchers
- Principal investigator: Ochoa-Dominguez, Carol — University of California, San Diego
- Study coordinator: Ochoa-Dominguez, Carol
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About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.