Understanding skull defects in Marfan syndrome

Characterization of calvarial defects in Marfan syndrome models

NIH-funded research New York University · NIH-10869053

This study is looking at how a condition called craniosynostosis, which affects skull shape, happens in kids with Marfan syndrome, and it aims to find better ways to help them without needing surgery by understanding the role of a special protein in their growth.

Quick facts

Grant typeR03 grant
Study typeNIH-funded research
Funding institutionNew York University NIH-funded
Lab location1 site (New York, United States)
Project IDNIH-10869053 on NIH RePORTER

What this research studies

This research investigates how defects in the skull, specifically craniosynostosis, occur in models of Marfan syndrome. It focuses on the role of a specific protein, fibrillin-1, which is crucial for the development of connective tissues and may influence skull growth. By studying these defects, the research aims to improve current treatment methods that often involve invasive surgeries for affected children. The approach includes examining the biological mechanisms behind these defects to find better intervention strategies.

Who could benefit from this research

Good fit: Ideal candidates for this research are children diagnosed with Marfan syndrome who exhibit craniosynostosis or related skull defects.

Not a fit: Patients without craniosynostosis or those who do not have Marfan syndrome may not benefit from this research.

Why it matters

Potential benefit: If successful, this research could lead to improved treatment options for children with craniosynostosis, reducing the need for multiple surgeries and associated complications.

How similar studies have performed: While craniosynostosis has been studied in various contexts, the specific focus on Marfan syndrome and its connection to skull defects is relatively novel and has not been extensively researched.

Where this research is happening

New York, United States

Researchers

About this research

  1. This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
  2. Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
  3. For full project details, budget, and progress reports, visit the official NIH RePORTER page below.
Last reviewed 2026-06-13 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.